I am so sorry. You are in my prayers.
Thank you..There is a website, for anyone here who is a spouse of an ALZ victim which has a wealth of information. It is thealzheimerspouse.com. It was started by a woman whose husband has this DX as her blog and has since grown to become one of the best sites for info on the internet. ONLY SPOUSES OF ALZ VICTIMS CAN LOG IN AND POST. Others are welcome to read the site and of course there is information and resources that are of great value to anyone who is in this fight.
I would encourage everyone to at least read that site to see what we, as caregivers, and patient as well, contend with on the day to day basis.
Many caregivers die before the victim of the disease due to the stress alone. We can face financial ruin,..the biggest fight caregivers have is not to be lost to this disease too.
We lose our life to this disease..friends vanish, phone calls stop, the doctor visits etc are endless, we find ourselves behind in ordinary tasks because what once was a shared environment is now all on one person...and in the end we are going to be taking care of , to be brutally honest, very large babies as they lose the ability to even go to the bathroom, dress themselves, feed themselves, walk, etc.
Go look at the website I posted and then if you do have friends who have this affliction within their homes, don’t be one of the “friends” who moves on and is not there for support..respite time is the most valuable gift a caregiver can receive and all to often we even have to pay and pay a lot for it ( out here it is at least 22 bucks an hour) for someone to stay with a LO so we can get break.
Don’t abandon people in your live who are struggling with this disease.