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To: Myrddin

sorry to hear of what you are going through and I am not a doctor so I don’t know from that view.

Just from my life and all who have been in it at times, I have come to find, even in healthy people, they focus on ‘weight’ when really people should focus on nutrients. How many millions of people over thousands of years went through their entire life relatively healthy and never once stepped on a scale? our society says focus on weight number.

Yes, you don’t want bone and muscle loss, which can lead to ‘weight’ loss, but if you focus food to get the important nutrients in, rather than some people who just eat high calorie non nutritious things to try to keep weight up. With eating the more nutrient dense foods, the body can have the nutrients it needs to better repair and balance systems/functions to help maintain “weight” number and regain healthful bone and muscle etc. Maybe even regenerate things and surprise doctors even.

Someone posted in another thread about an inexpensive store brand version of beano product at walmart that helps break down carb molecules for people who’s body is having trouble with that. Alpha-galactosidase is the ingredient.

but of course listen to your doctor and professionals ideas too. I just find they are some times to programed in what they learned and don’t think of the simple or more patient friendly ways to get good whole body results or solve things.
I do find much help from other FR experiences, and online alternative doctors who give evidence to back their ideas to help people with things, so searching food or alternative things to help your situation may be worth it.

We all get health challenges of body, mind or spirit, and God can help us journey through. prayers for your continued recovery and best health


74 posted on 03/29/2025 4:02:04 AM PDT by b4me (Pray, and let God change you. He knows better than you or anyone else, who He made you to be.)
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To: b4me
The Whipple removed my duodenum. That means no lactase, so I drink lactose free milk. The solves the gas problem. Using FODMAP as a set of "avoids" prevents other problems down the digestive tract. I'm currently focused on getting 100 to 120 grams of protein daily paired with 3 grams of HMB to preserve and build muscle. Daily D3 10000IU and K2 500 mcg to support moving calcium to bones and build muscle.

A difficult part of a post Whipple state is triggering "dumping". Last Saturday I was 150.7. This morning, 146.7. A 4 lb loss for the week. FitBit shows I was averaging just over 1,000 calories input daily while burning 1700. I'm 5 ft 11 in tall, so 146.7 is trending light. My interaction with grok indicates I really need to achieve 160 to improve my survival i.e. provide resources for my immune system to fight off any cancer that may still be around.

77 posted on 03/29/2025 4:30:00 PM PDT by Myrddin
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