Guess I’m screwed
Maybe this is what’s wrong with my brain. seems like it’s getting more frequent as i get older that people tell me I’m full of crap after I post my opinions. maybe it’s true.
As one gets older, the call of the can comes more often night after night. Sleep is lost.
This is the brain function that my great-granddaughter doesn’t have. She is on a trial drug that is helping but this cut the budget stuff has affected them and some of the funding that the researchers need. The medicine is $20,000 a month. Many people are supporting them by having fundraisers, but the condition Batten’s Disease is terminal, many of them dying in their teens. My sweet one is 9 but is going blind and has already learned her braille alphabet. She has seizures and has a helper dog but she hasn’t learned yet how to read her body’s signals that mean a seizure is coming.
The amazing part is her parents are doing something right because she is happy, and energetic and is still riding the school bus to school. ♥️