Posted on 07/07/2024 7:07:02 PM PDT by Red Badger
Thank you. I noticed that too. I’m an allo SCT recipient. With a tad bit of gvhd. Been blessed as it can be a pretty serious ordeal. (You can see Post 11).
Just curious as to how you know this? It’s not typical info most know unless they have personal experience.
There should be nothing painful about the actual stem cell transplant.. it’s basically a transfusion. There may be some bone pain as the cells rapidly grow in the marrow. (I Had one). But, I’ve never heard anyone call the process painful.
Most pain crime from gvhd or chemo related issues .
I also am an administrator on a sct/BMT page (for 7 years) with about 15k members.
evidently there was host versus disease and the changing of the blood type was painful.
Ive never heard of pain occurring with changing of blood type. The bone marrow has basically been killed off by chemo (and radiation if used). Honestly, 7 personal years and thousands of posts on the page, I’ve never heard this. Perhaps, your friend misunderstood the dr.
I really dont know. She told me that the daughter had significant pain with the change. More the blood type change than the transplant itself.
She never really recovered and is extremely disabled.
There is/can be pain because of the rapid new cell growth in the bone marrow after the stem cell transplant, but, that’s not from blood type change. I too experience the deep ache. And then 7 years of Neurapathy from the intense chemo for AML and the SCT.
you have been through the mill. this was because of AML too
She sounds similar to what I’ve been thru.
Let her know to come join our page . We are a great group who support each other. No one really understands the physical/psychological aftermath . I’ll send it to you in DM. Those who use their own cells bounce back much better. The effects from the intense chemo and the restrictions to avoid gvhd is life changing.
Just recently (October) I forced myself to get a 16 hr/week job.(4 days 4 hours) to make myself get out of the house. I was heading down a bad road over the years letting the pain dictate my life. I do need medication to tolerate it, but it’s been life changing to get this lil part time job.
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