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To: chuck allen

Thanks for explaining the procedure and your recovery pattern. Sounds like you received excellent care.


36 posted on 10/19/2023 10:04:32 AM PDT by lee martell
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To: lee martell

You’re welcome, I have indeed had good care, except for my GP who was stumped. He had me do MRI and a full body and head CAT which were negative, ( did find out I have some gallstones), he didn’t know what to do so I went to the Neuro center and they figured it out right quick. Again, it was the CRP blood test, and the ESR sediment rate blood test that really set the Dr off on GCA. Only the biopsy would confirm. He was right and he he scared me to death when he called me, he said, “go to pharmacy right now, I have called them and you need prednisone immediately, 60mg, go get it and start right now or you can go blind. Don’t stop taking it until I tell you to.” So thats what I’ve been doing, I’m now on a long slow taper down from the 60mg prednisone, once I get to 10mg I will taper 1mg a month for 10 months with monthly blood test to check CRP and ESR levels. If they go up, my prednisone goes back up. If my numbers stay down I will be considered in remission.


38 posted on 10/19/2023 10:20:13 AM PDT by chuck allen
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