I am with RummyChick here - CCP virus is “real” with regards to “long Covid”.
Like another commenter here, one scientific question is whether this effect is observed for the unvaxxed too (who got CCP), and for the vaxxed (who either did/not get CCP virus). If our givernment would quit playing politics with this we might get some scientific answers.
Let me share briefly my experience w this reality. Someone very very very close to me (”patient”) was vaxxed (2 shot regimen) in early 2021. Was required by employer (health care) hospital, administrative. In Jan 2022, patient came down w full blown CCP for 1st time. 4 very difficult weeks, had to apply for FMLA because of headaches, fatigue, brain fog, memory loss. Non vaxxed took care of person (you can guess who), close contact, take to/from Dr appointments,etc. Let’s just say I did not catch CCP virus to any appreciable extent from patient. For patient, improvements seen about 3 months later, but no full recovery. To this day, still fatigued that occurs almost daily, brain fog, headaches too. Primary care physician kept saying get rest, it will work itself out, and oh by the way ... patient should get 2 booster shots when patient feels better. Patient’s condition hasn’t changed in last 4 months. One month ago primary care Dr told patient that patient was showing signs of being a hypochondriac - said psychological counseling needed. Patient disagreed, said vaxxed Dr was not listening. This week after paid out of pocket paid brain scans, initial diagnosis is that patient has physiological brain matter changes seen with long Covid.
Was it the vax that caused this? Was it the vaxxed person getting CCP virus that caused it? We can’t tell as other specialists now are scheduled. What I know is that this person has a brain injury that might not be reversible, and whether it progresses to further disability is unknown. Despite this coming from NPR, a 100% mouthpiece for the demonkkraps, maybe they are coming around to the truth. I’ll leave my criticism of them for another time.
We (patient and me) are personally dealing with something that has been life altering, and the question will it get even worse, be permanently disabling and/or life shortening. Prayers to all that suffer this.
Your story is why the LDH isoenzyme test can be helpful...because even if all the other first round tests are showing nothing you can use the LDH test to say Look here..you may not understand this test but some brilliant scientist developed it and it is telling you there is a problem...thus you get past the hypochondriac BS.
Not saying it would have worked in your case. It’s just a tool to use.
Start looking at the articles that are studying the VAGUS nerve for Long Haul Covid. It might give you a clue as to something to try that might help.
Good Luck...and feel good that you ignored the professional and went with what you believe to be true..even if you had to pay out of your own pocket.
also there is a blood test that can be useful for white matter issues..Glutaryl-C5:DC
You might ask if it would be helpful to get her baseline of this test and then you can keep an eye on changes. It is typically ordered to look for glutaric aciduria.
I predict you will have to continue to fight tooth and nail to get testing.