[metmom]

If you have weird or very rare things wrong with you it is a medical battle.

You called that right.

I’ve had the same experience asking doctors questions already knew the answers to and got the same clueless response.

If I can read it on the internet and it’s in their area of specialty, then why have they not heard about it?

Trust them?

Those days are long gone.

[RummyChick]

I think you are the one I was thinking about the other day when mast cell came up on a thread. Dont remember the context but here is a link you might be interested in

https://www.news-medical.net/news/20210907/Activated-mast-cell-disorders-potentially-linked-to-SARS-CoV-2-immunity.aspx

[higgmeister]

I went to a Podiatrist recently and told him that I had been padding my broken toe with Band-Aid Hydrocolloid "Hydro Seal™" bandages and he said he had never heard of them, as he was pealing it off of my toe.   Now that shook me a little that a foot doctor did not know of new technology blister Band-Aids, but I didn't say anything about it.   He did help with my problem and told me not to worry about it.