Without having walked in their shoes I cannot imagine how my wife and I would have acted. I can say I would do everything possible to save my child.
What a horrible choice.
From what’s in the article, it’s apparent that the mother is coaching the daughter, so I disagree that the daughter is making the decision.
What a frightening, devastating discussion to have with your four year old child. This is that family’s reality, a cycle of surgeries, recoveries, and the ongoing process of her illness, both incurable and unstoppable. It has been that way since the girls’ birth. Some would consider this as child abuse, and with some children, it would be. There are other children, who have deep wisdom, as they have been forced to think, forced to try rationalizing a life full of pain, inconvenience and a fair amount of loneliness.
Some children DO know what their saying, when considering the big topics.
Many of us underestimate what a child is capable of or prepared to experience. My prayers go to this family, that they receive the guidance and the peace of mind needed to make the correct decisions. Wow.
When there is really no option to change anything, then the courageous thing in my opinion is to bring my child home to live the best life in the time left.
The kinds of treatments left for someone like this wee one are torture treatments with no upside. Sometimes time is not, in my opinion the best thing. Particularly when there is an alternative.