Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Thank you so much...I truly appreciate the prayers. I know God will find a way to help me get this dealt with.
The owner of the transport - is this a bonded medical transportation company who can be trusted with your pain Rx?
He owns a taxi company and a medical transport company. He is also a pastor and a wonderful man that I think the world of! He would never do me wrong, I have complete faith in him that he would not allow my meds to disappear. HE is the only one outside of my family that is on my list that can pick them up for me.
Also, I can’t help but wonder if this might be the same transport company you used for your trip to Augusta - where the driver ran off the road? If so, were you injured?
Not the same company. Personalized is the company my friend owns and the one I was scheduled with for the Augusta trip was "Angelflight" out of Fitzgerald GA. The only injury I have noticed is that my back and hip are throbbing terribly. I can't get comfortable to sleep no matter what I do and the pain meds aren't doing as well as normal to get my pain down to manageable. I'm rarely free from pain anyway, but after bouncing out of the ditch in a huge medical "lift" van, I now hurt much more and will TRUST less! I have notified the organization that schedules the rides that I do not want to ride with angelflight ever again.
Thank you sis...and BTW...THANK YOU so much for getting some popcorn from the boy!!
Oh! Thanks....I was going to tell you that it came yesterday and it’s yummy, as usual. I have to pace myself. It’s a huge bag. LOL!
I’m so glad you are enjoying it! ...and it’s wonderful that you got from the boy so he benefits in boyscouts for your order!
I hope that little bit helps somehow. Wish I could have done more. I’ll probably order more sometime, when I can afford it. :)
This type of thing happened to a friend of mine and the pharmacy needed the paper for the type of medication.
They used a cab from the doctor to the pharmacy and then she had the pharmacy cab it to her.
.
Tracy, that is just horrible about the Angelflight company - were you headed to a doctor in Augusta? Did they check you after such a near-accident? They really should be notified that the driver fell asleep - he could have killed everyone in his vehicle and/or others on the highway! They need to know that!
They don't just release it to anyone...I had to put him on a list of trusted people who could pick up my scripts and could be an emergency contact, plus other things...such as have access to my medical info and such. He only picks up my meds for me, and I'm blessed to have a friend such as him to help. I request his company for our transport which helps him as the org that schedules the trips stores the requests and that is used to determine which companies are used most when things are slow.
Tracy, that is just horrible about the Angelflight company - were you headed to a doctor in Augusta? Did they check you after such a near-accident? They really should be notified that the driver fell asleep - he could have killed everyone in his vehicle and/or others on the highway! They need to know that!
We were going to my son's appointment in Augusta. Our pick-up time was 5:30, he was late and got us to the appointment a few minutes late too. The driver lied and said he was trying to avoid an obstacle in the road, but I looked and there was nothing there, and there was a totally clear lane next to him that he could have shifted to also. They didn't check me out...but I made sure the organization that schedules the trips knows of his lack of driving skills...he also passed an ambulance which had it's emergency lights on...it was going the same way we were and our driver passed it (isn't that illegal?) He was speading 85 to 95 miles/hour, every time he hit a dip in the road, the lift van would bounce all over the place and that made me hurt so bad. I'm still having troubles with throbbing in my back and hip. It really hurts, and that is one of the bigger reasons I am so scared about not getting my pain meds filled...I know I'm going to hurt, I hurt daily, but the med helps a little.
That is also crazy that Cody had to go that far to a doctor - they don't have one that specializes for him in Savannah?
Thank you for keeping us informed. Prayers continue...
He was speeding 85 to 95 in a 55 mile per hour zone...
...the doctor he was going to see in Augusta is his Pediatric Rheumatologist. They have Rheumatologists closer, but not ones who specialize in pediatrics, and since Cody is still a minor, he has to see a pediatric doc.
That is crazy - he probably drives like that all the time- hard to imagine others haven’t complained.
I was soaking in my tub earlier and thinking about your situation. You mentioned your pharmacy is closed on Sunday, which made me think it must be a small locally owned pharmacy. (We had those in the small town where we used to live and I loved the personal service, even though prices were higher than Walmart/Sams...sadly) - anyway, You should talk to the pharmacist about letting you put your drugs on an account this month because you should get your check for the back disability payments within the month! If you explained what happened with losing the medicaid I’ll bet he would work with you! You’ve been there for awhile so he knows you and knows you need the meds. Often those small town places have accounts for local customers!
Praying, t.
BTTT
a ping for you my friend.
I will call and ask them this morning if they can do this for me. It’s a good idea, thank you for mentioning it!
Just got a notice in my email this morning...a very precious person has sent some help for me. It’s enough to get one or the other...the pain meds and a little bit towards the rest or the rest and a little bit towards the pain meds. I will keep the person’s identity to myself, but I sure hope they know how much this is appreciated. Under the circumstances...I will wait on the rest and use the funds to get the pain meds. I will ask the pharmacist if they can create a temporary account to help me with the others.
Call the medical companies maybe they can assist.
We now have a name for the attack that sent me to the hospital last Oct and again Aug 23 Colitis ileus. Slow motility with an obstruction, only treatment is a liquid diet and rest. And PAIN meds. Their motility drugs are not very effective. Had a reaction to Reglan broke out in a red rash back and chest that itched like hives and diarrhea. They did learn there is no infection in the GI tract.
Praise God for angels on this earth!
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