Posted on 01/17/2014 6:14:56 AM PST by trussell
I have faith that the implant is going to help me...when they took the trial away it was like taking candy from a baby...it was cruel! And waiting so long for the permanent one is cruel too. I am praying I am making the right decision in getting this done. It’s a huge step and one that I struggled with at first. I remember the few days I had the temporary unit in my spine, my legs didn’t hurt, I could lay on my sides and they didn’t hurt! My right hip still hurt like crazy and my back was horrible and my stomach hated me from the buzzing, it would make me sick when I ate! But when the tech messed with the unit before it was removed, she got the buzzing out of my tummy and all the way up my back to the middle of my back! It felt so good, I hated when they took it away!!
Went to the doctor on Wednesday...he asked me how long have I been having the increased pain...I told him that I had complained to his Nurse Practitioner for a few months now and that she has told me “He’s not going to give you anything stronger, period”. He said “I’ll have to have a talk with her, I don’t like to see you in the much pain”. He asked if the percocet was working at all anymore and I said not so much...even when I take 2 of them at once. He said “quit taking those, I’m going to give you dilaudid instead, and give you a numbing PATCH to put on your back...leave it on for 12 hours then replace it with another” He wants to see me in 2 weeks to make sure my pain is being manage. I started the dilaudid a few days ago (as soon as I got through the pharmacy drive through) and so far it only helps at night when I take 2 of them with my nerve medicine and my sleeping medicine. I get the idea that the Nurse Practicianer could be losing her job for not talking to the doctor when I said I was in pain and she said I wasn’t getting anything stronger. She didn’t even TALK to the doctor, and I told him she said that and he confirmed that he didn’t know!
Just found out one of the meds the doc wants me on is not covered by my insurance and it is $275 for a one month supply....no way I will be getting that one. :( The medicine the doc wanted me using is a lidocaine patch, 12 hours each patch then replace it. They say since my insurance won’t cover the patch, they will do the cream instead...but I can’t reach my back to rub a cream on and I’m not comfortable asking my teenage son to rub a cream on my nude back (I am really fat). I am on gabapentin for nerve pain. I’m on amitriptiline 50 mg to help me sleep. As for the new medicine...one 2 mg dilaudid doesn’t do it. I take my middle of the night dose at bedtime...so I take 2 at bedtime as well as taking the gabapentin and amitriptiline. I manage to sleep with that cocktail but the rest of the day is still stiff and sore. I’m hoping I can get the patches so I can get some relief! They talk it up like it’s a miracle drug. Maybe I can find out the name of the manufacturer and see if they can help me get them.
Also, my procedure to implant the spinal cord stimulator is set for January 27th...same day surgery, will be home that night. Really look forward to it, though I’m still scared about having the unit in my spine.
Please, keep up the prayers. I appreciate them so much!
Thank you, and I’m doing my best to keep my head up in this situation. I am a woman though... :)
I truly appreciate your prayers and good thoughts.
and I appreciate that so much. Thank you and bless you.
My boy tries so much to be helpful every time I need it, but he has a life too and is often away at school, church, boyscouts, with his girl friend and his other friends. He’s a great helper, but so busy considering he’s got his own health issues.
Missed this the first go around. Prayers for you sent.
Praying for you, trussell.
Also check www.goodrx.com for possible coupon/s for your meds and patch. Free site. I save $200/month on needed meds for a family member who has no insurance. It’s worth looking at.
Have you been able to find a local church who will pray for you?
I am being taken by a neighbor to their church for prayer next weekend. They wanted to do the prayer when they could gather the most of the elders, and they mostly work the week shift.
trussell: MASSIVELY IMPORTANT!
Let us know when that is going to be, so we can be praying, too! Let us know exactly what time to be praying, as close as you can. And post a reminder before you leave. If you have a cell and can call someone here and say “They’re getting ready to pray”, even better.
There is power in joined prayer!
Prayer is set for tomorrow, following the service... and the entire congregation will be invited to join in the prayer. 12:30 Eastern. If you are able to, please join in.
Had my first visit with my therapist for my hands. She isn’t sure which one it is, but she believes the issues with my hands will either be Carpal-tunnel syndrome (sp) or a nerve issue coming from a bulging disc at C6. She is going to try to find a home traction unit to give me some relief, she’s not sure my insurance will cover it, but she is going to check. She says my xrays are going to be wasted time and resources as they will not show anything structurally wrong with my hands.
Prayers up trussell. Wish there was something we could do to help fix ya.
Will keep you in my thoughts
I can tell you from experience that a disc can cause severe pain in arms and hands. I had severe arm and hand pain from a herniated disc. Doctor had set Hubby up with a home traction unit for his neck. Fitted on him and filled some contraption with water for the weight. Didn’t work for him, hope it works for you.
BTTT
I’m happy to hear you’re able to get to church for prayer.
Trussell,
I’m adding your name to our church’s prayer list.
They really pray over each one. Our church believe in miracles, and gets results because we believe in miracles.
To God be the Glory!
Does he still have it? Would he be willing to part with it if so?
No, sorry. We gave a bunch of medical equipment that belonged to his mom to a friend of ours that takes it all down to Mexico. We threw it in the load. ;(
We pray, O Lord, that the suffering of Thy servant cease.
In the name of the Father, and of the Son, and of the Holy Ghost, amen.
It’s ok, it was just a thought in case my insurance won’t cover it
And if we still had it I would gladly ship it to you.
That is what he had. They are $30 on ebay.
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