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To: Silentgypsy; left that other site; JustAmy; Kitty Mittens; Hiskid

The good news is the mother has a diagnosis. The bad news is I don’t think she gave it to me right as I couldn’t find the words in the medical dictionary. I think the most likely match is idiotropic paresthesia, which doesn’t have it’s own entry but both of those words does have a meaning. It would suggest that her nervous system sort of turned in on itself for a short period of time. Now that that part is over, she just needs PT to get back to normal.

If I’m right, I think of it as sort of a spasm of the CNS.

When I get those they result in really strange ideas, so I guess my form is mild (unless I act on them).

Thanks again for all your prayers. I think this will end the daily updates. I’ll update when she’s out of the hospital or if I get any other significant news.


4,745 posted on 03/05/2013 5:23:45 AM PST by ArGee (An open mind is like an open window - if you don't have a screen, you get flies.)
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To: ArGee
...It would suggest that her nervous system sort of turned in on itself...

When I was younger, I thought I was "allergic to myself," and when I was finally diagnosed with CFIDS, I knew that the allergy idea was correct; CFIDS is an autoimmune disease, just as is arthritis and psoriasis. It also affects the CNS drastically.

I truly hope your friend doesn't ever have to go through this again. She must have been very frightened and confused by the way her body was acting. I won't remove her from my prayer list until or unless you request it.

4,750 posted on 03/05/2013 6:02:04 AM PST by Monkey Face (In wine there is wisdom, in beer there is freedom, in water there is bacteria. ~ Ben Franklin)
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To: ArGee
I think the most likely match is idiotropic paresthesia

Idiopathic parasthesia.

Translation:
We don't know why, but she has a sensation of numbness or tingling on the skin.

Subtext:
It sounds more impressive with a fancy name, and this way you might think we know what we're doing when we tell you we don't...

4,757 posted on 03/05/2013 8:15:50 AM PST by null and void (Gun confiscation enables tyranny. Don't enable tyranny.)
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To: ArGee

Thank you for the updates. Very bizarre attack, but God’s grace is clearly sufficient for her. We’ll continue to believe that healing is speedier than the docs anticipated.


4,767 posted on 03/05/2013 10:17:53 AM PST by Hiskid (Jesus is Lord)
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To: Silentgypsy; left that other site; JustAmy; Kitty Mittens; Hiskid
OK, the young lady left the horsepital on Saturday and is safely ensconced in her home. Mother is finally getting some much needed sleep. The youngster is still working up her strength and they still don't know what happened, but unless something new pops up on the radar, we can thank God for the good report as I thank you all for your prayers.

I understand this disease is getting its own new name. What's Latin for "meh-whatever"?

5,201 posted on 03/11/2013 5:48:57 AM PDT by ArGee (An open mind is like an open window - if you don't have a screen, you get flies.)
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