I really agree with you on this statement, Sam!! Side effects from medications can just be absolutely devestating, but, if outside the realm of 'noted' side effects, are, oft times, ignored by people who should know better.
We found a page on the internet where people wrote about symptoms they manifested after prolonged exposure to Coumadin. Most of Jeanne's symptoms were listed right there on that page, even though most of them are not on the list provided by the druggist.
But my main reason for thinking the drugs could have been the real problem is that her symptoms started shortly after initial administration. She never had them before. Not a coincidence IMO.
Anyhow, now we've taken a step, if it works, fine, if not, at least we know we have to look elsewhere.