Posted on 11/03/2013 7:14:31 PM PST by Tired of Taxes
This would be a ping list for survivors and caregivers to share information with each other on treatments.
If you are interested in your name being added to this ping list, please post below.
This is a good idea, BykerBayb. Like you, I started at one hospital but switched to another.
I found a lump myself, and the mammogram showed that it was cancer (without a doubt). My GYN doctors refer everyone to one particular surgeon at a nearby hospital, and they told me this surgeon was the best around. So, that’s where I went.
I pushed and pushed for things to happen quickly, but everyone was moving as slow as molasses. (It was the Thanksgiving & Christmas season.)
When the surgeon’s office wouldn’t see me without a biopsy first, I said, “Forget the biopsy. We know what it is. Just take it out.” They insisted on a biopsy.
When the surgeon finally met me, I joked, “You know, I’m free this afternoon. What are you doing? Let’s take this thing out right now.” He wanted me to have an MRI.
When the MRI showed two more spots, then the oncologist wanted a biopsy of the other spots. When those two spots tested positive, the oncologist said he wanted me to have genetic testing.
By now, eight weeks had passed. I wanted surgery, not more testing. Still, the surgeon said I’d have to wait another few more weeks for surgery. Long story short: Relatives caught wind of what was happening, and a survivor in my family referred me to a different surgeon. It turns out, this next surgeon truly was the top surgeon around. She saw me right away and scheduled my surgery for the following week. Then she sent me to the top oncologist around.
So, in my case, I don’t have a website to recommend. The best information I received was given to me by another survivor.
Like you, I’m so glad the first hospital didn’t work out. It was like divine providence because, soon afterward, my insurance dropped that first hospital. And recently, MD Anderson opened at the hospital I switched to. :-0
Merry Christmas!
The latest update for the ping list:
Armen Hareyan; B4Ranch; bayareablues; BykrBayb; Cajungirl; cookcounty; dadfly; duckbutt; Gabrial; GILTN1stborn; Grammy; Grazie; FlyingEagle; freemama; jch10; jemckay19; Jet Jaguar; johnsmom; JustAmy; kalee; katykelly; Mears; MrsFlyingEagle; My Favorite Headache; njmaugbill; Nowhere Man; the OlLine Rebel; PastorBooks; RitchieAprile; redleghunter; ru4liberty; Shimmer1; Smokin Joe; Tired of Taxes
And a very Merry Christmas to you! Your post set the mood I want to hold onto today, so I’m done FReeping for the day. I hope I’m not missing any important news. LOL
Please add me to the list please.
DLBC Lymphoma stage IV 2007. I was in my late 30s at the time. Hard couple of years. Causes me some permanent health issues but nothing too debilitating and a 16 year marriage. One door closes, others open.
Thanks
To All: Several new names have been added to this ping list. You can read their comments on this thread. As a reminder, the most recently updated list of names is held on this thread, in case any of you need to use it.
Latest Update of Cancer Warriors Ping List:
Armen Hareyan; B4Ranch; bayareablues; BykrBayb; Cajungirl; cookcounty; dadfly; duckbutt; Gabrial; GILTN1stborn; Grammy; Grazie; FlyingEagle; freemama; jch10; jemckay19; Jet Jaguar; johnsmom; JustAmy; kalee; katykelly; Mears; MrsFlyingEagle; My Favorite Headache; njmaugbill; Nowhere Man; the OlLine Rebel; PastorBooks; RitchieAprile; redleghunter; ru4liberty; Shimmer1; Smokin Joe; Tired of Taxes; wgmalabama
Welcome. Sounds like you are hanging strong!
Welcome! I’m glad you’re here to share your story.
I have a blessed life but this topic is of a particular interest to me.
Thanks
Welcome bama! My, you sound you had a big row to hoe for a while and too young. Hope things are good now with health.
Add me to the list.
Was diagnosed with breast cancer in August 2012, had double mastectomy with reconstruction and port put in September, Started chemo in November for a year and finished this past November.
By His grace I am cancer free.
To All:
The latest updated Cancer Warriors Ping list:
; Armen Hareyan; B4Ranch; Ban Draoi Marbh Draoi; bayareablues; BykrBayb; Cajungirl; cookcounty; dadfly; duckbutt; Gabrial; GILTN1stborn; Grammy; Grazie; FlyingEagle; freemama; jch10; jemckay19; Jet Jaguar; johnsmom; JustAmy; kalee; katykelly; Mears; MrsFlyingEagle; My Favorite Headache; njmaugbill; Nowhere Man; the OlLine Rebel; PastorBooks; RitchieAprile; redleghunter; ru4liberty; Shimmer1; Smokin Joe; Tired of Taxes; wgmalabama
Amen! God Bless!
Glad to hear it! I lost Mom in November to Inflammatory Breast Cancer (IBC) and I’m going through a lot now. I’m glad to hear some one else beating it. Welcome to the list, my case is one of the ones who sparked this list.
“I lost Mom in November ... and Im going through a lot now.”
Nowhere Man,
I lost my Mom in September. I’m going through a lot now, too.
Know that you aren’t alone. There is plenty of support here. Feel free to post a prayer request or a “vanity” post. A lot of people on here are going through it, too.
Please add me, also.
Welcome aboard. I’m sorry that your sister is facing this ordeal a second time. In a moment or two, I’ll ping the whole list to this thread. God bless!
To All - Two new members have been added to the list.
Updated Cancer Warriors Ping List:
; Armen Hareyan; B4Ranch; Ban Draoi Marbh Draoi; bayareablues; BykrBayb; Cajungirl; cookcounty; dadfly; duckbutt; Gabrial; GILTN1stborn; Grammy; Grazie; fatfertile; FlyingEagle; ForMyChildren; freemama; jch10; jemckay19; Jet Jaguar; johnsmom; JustAmy; kalee; katykelly; Mears; MrsFlyingEagle; My Favorite Headache; njmaugbill; Nowhere Man; the OlLine Rebel; PastorBooks; RitchieAprile; redleghunter; ru4liberty; Shimmer1; Smokin Joe; Tired of Taxes; wgmalabama
Just cam across this through the Noel Sheppard thread.
If you are still collecting names, I request to be placed on the ping list. Thank you.
Whenever someone new joins, the updated ping list is posted here on this thread, in case anyone needs to use it. God bless!
To All: Updated Cancer Warriors Ping List:
; AllAmericanGirl44; Armen Hareyan; B4Ranch; Ban Draoi Marbh Draoi; bayareablues; BykrBayb; Cajungirl; cookcounty; dadfly; duckbutt; Gabrial; GILTN1stborn; Grammy; Grazie; fatfertile; FlyingEagle; ForMyChildren; freemama; jch10; jemckay19; Jet Jaguar; johnsmom; JustAmy; kalee; katykelly; Mears; MrsFlyingEagle; My Favorite Headache; njmaugbill; Nowhere Man; the OlLine Rebel; PastorBooks; RitchieAprile; redleghunter; ru4liberty; Shimmer1; Smokin Joe; Tired of Taxes; wgmalabama
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