Posted on 11/03/2013 7:14:31 PM PST by Tired of Taxes
This would be a ping list for survivors and caregivers to share information with each other on treatments.
If you are interested in your name being added to this ping list, please post below.
Cancer sucks! There are no words to describe how much childhood cancer sucks. I’ll be praying for Eli. God bless him and give him strength.
Thank you, BykrBayb.
Pray for his strength and for some newer treatment he’s now receiving.
I’ll pray for Eli, too, xzins.
I wish there were no such thing as childhood cancer. Fortunately, children are so strong - they’re far tougher than us adults. Prayers for Eli and his family including you, xzins.
He is a little warrior, Tired of Taxes. We pray that he keeps on fighting it.
Went to the dr on Thursday, got the path report from my surgery. In addition to the stage 0, non invasive cancer they went in to get, there was a stage 3, invasive cancer in there too. Five of the 14 lymph nodes they tested were cancerous. That’s cancer #3. darn.
They want me to have chemo again. I don’t think I can do that, besides, it didn’t help last time.
Oh, no, I'm sorry to hear you're facing chemo again, Shimmer1.
I hope you don't mind that I'm pinging the whole list, in case anyone else on the list can offer more advice.
Do your oncologists have a different kind of chemo to offer you, if the last regimen didn't work? I had ACT. So far, so good (fingers crossed).
Also, what else did your pathology report on Thursday say? For example, is this new tumor hormone-positive?
...”They want me to have chemo again. I don’t think I can do that, besides, it didn’t help last time”.....
Well you might not be here now if it hadn’t worked somewhere....
You’re decision of course, but not taking it you also know what to expect.
Sorry your facing this.....may God lead your decision according to his plans for you.
I’m sorry.
You’re in my prayers.
Found out two days ago that I have prostate cancer. Caught it very early and survival rates for 5-15 years is virtually 100%.
If you have to have cancer, prostate cancer in the early stages is the one to get because the cancer can be destroyed. Now that I have been diagnosed, I will be getting treatment at MD Anderson in Houston, the best cancer treatment hospital in the world. Might even get into a research project with them.
Prayer List ping
See post #125 by Shimmer1
Prayer List ping
See post #129 by SeaHawkFan
Prayer List ping
See post #129 by SeaHawkFan
No, here’s how it went. I got breast cancer, stage 2 only because of the size of it. I had a lumpectomy in ‘12 and I was cleared of cancer. Sentinel nodes showed clear too. But I had a high risk of recurrence, according to this fairly new test, archetype DX. So they recommended chemo and radiation. So I had them. Just ruined my health, but I did it.
Now two years later, I’ve had two more cancers, at the same time apparently. So I don’t see that the chemo, whose side effects affected me greatly for two years, did me much good.
You know, he didn’t even tell me if it was hormone positive. My first one was, and I’ve been taking tamoxiphen since March of 13. I just didn’t think to ask. All I was thinking of was “I’M GOING TO DIE??????????????”
Now I know I’m in the hands of God, but my sons.....I hate to leave my sons and grands. And I know I might not die of this. But it feels like I am.
Oh I don’t mind, I appreciate you pinging everyone for me.
So sorry you area in this. God bless and may He help you get through.
Your history sounds the same as my mom, who had exactly the same situation last year. Dear God. Except I don’t know what you mean by risk with DX. She had no treatment except the daily pills, maybe the same as yours.
I'll bet that's the first place all of our thoughts go to when we're diagnosed - isn't it? Then immediately we think of our children, families, the people we love.
But there are many survivors including people who were diagnosed twice and survivors of all stages. I met a woman at the oncologist's office who had many more positive lymph nodes and was still doing well a decade later.
The thing is, why didn't your doctors catch this other tumor earlier? It's only been two years since you were treated. And - you're right - it appears that neither the tamoxifen nor the chemo must have worked on this other tumor. Did the oncologist say you needed a different type of chemo/treatment now?
Is the oncologist you're seeing a BC specialist?
My prayers are with you, Shimmer1. Mine was stage 2, by the way, with 2 positive nodes and a positive margin.
Good news that it was caught so early, SeaHawkFan, and that you’ll be treated at MD Anderson.
Do you want your name added to this ping list?
(I always feel sorry that I ever have to ask that question. This is a “club” no one would ever want to qualify to join - at any stage - and I would never wish membership on anyone.)
Also, Shimmer1, I thought you’d like to see this blog kept by Fox News correspondent Jennifer Griffin during her fight against stage 3, triple-negative BC:
http://jengriffinblog.blogspot.com/
She was only around 40 years old with young children at diagnosis. She had one 9 cm tumor and a second tumor. She’s still doing well 5 years later!
There’s a fairly new test, Oncatype DX, that tests your tissue and gives a percentage chance of recurrence. I had a 34% chance. I thought, oh good, that’s not too bad odds. But the oncologist was very grave and not happy, he said that was very worrisome. Turns out that <10% is acceptable.
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