If I had an issue like this, aside from prayer Scythian's the guy I'd be Freepmailing twice a day.
If I recall, he credits his health to
a. The grace and mercy of God in Christ Jesus
b. Years of absolutely exhaustive research and much trial and error.
Similarly, the doctors shrugged their shoulders and said, "Sorry." So he had no choice but to try to figure out the puzzle himself.
As a result, he knows a LOT of stuff.
You do learn a lot by yourself. The internet is a great resource.