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Disabled Woman Would Cry 'Help Me,' Caregivers Claim (Terri Schiavo)
CNSNews.com ^ | 9/03/03 | Jeff Johnson

Posted on 09/03/2003 6:09:02 PM PDT by kattracks

(Editor's note: This report contains quoted language and descriptions of alleged multiple instances of denied medical care that some readers may find offensive.)

(CNSNews.com) - A federal judge Tuesday refused to stop a Florida court from ordering the removal of a disabled woman's feeding tube at the request of her husband. However, the judge gave the woman's parents ten days to amend their lawsuit against the husband, the hospital caring for the woman and the hospice where she is being kept in anticipation of her death by starvation or dehydration. The lawsuit also named the husband's attorney as a "non-party co-conspirator" to the alleged violations.

Robert and Mary Schindler filed an emergency complaint Saturday with the U.S. District Court for the Middle District of Florida in Tampa in an effort to block their daughter's husband and legal guardian, Michael Schiavo, from moving forward with plans to remove his wife's feeding tube. Thirty-nine year old Terri Schindler Schiavo suffered a brain injury in 1990 under questionable circumstances. That injury, complicated by a lack of therapy for more than a decade, has required that she be given nutrition and hydration through a gastrostomy or "feeding tube."

Since receiving a $1.2 million medical malpractice award on behalf of his wife, Schiavo has provided only subsistence care for her and, based on affidavits included with the Schindlers' suit, allegedly forbidden medical professionals from providing his wife with any therapy or rehabilitation. He is currently allowing her to receive limited medical treatment for a severe infection under a court order.

Former caregivers file affidavits supporting allegations

Three medical professionals who had cared for Terri in the past filed affidavits accompanying the lawsuit, disputing Michael Schiavo's claims that his wife was in a "Persistent Vegetative State," which is the requirement under Florida law for a feeding tube to be removed. The medical experts also chronicled a long history of alleged denial of care and therapy by Schiavo.

Carolyn Johnson, a Certified Nursing Assistant (CNA), cared for Terri in a nursing home in the early 1990s. She described her shock at being ordered not to provide the same care for Terri as a patient in the same room with a similar brain injury was receiving.

"I learned, as part of my training, that there was a family dispute and that the husband, as guardian, wanted no rehabilitation for Terri," Johnson explained. "Once, I wanted to put a cloth in Terri's hand to keep her hand from closing in on itself, but I was not permitted to do this, as Michael Schiavo considered that to be a form of rehabilitation."

Another CNA, Heidi Law, cared for Terri at a convalescent center in the mid and late 1990s. Law described similar orders she received not to encourage Mrs. Schiavo's recovery.

"I know that Terri did not receive routine physical therapy or any other kind of therapy. I was personally aware of orders for rehabilitation that were not being carried out," Law alleged in her affidavit. "Even though they were ordered, Michael [Schiavo] would stop them. Michael [Schiavo] ordered that Terri receive no rehabilitation or range of motion therapy."

Law also alleged that her attempts to document Terri's potential for improvement were thwarted.

"I made extensive notes and listed all of Terri's behaviors, but there was never any apparent follow-up consistent with her responsiveness," Law said. "There were trash cans at the nurses stations that we were supposed to empty each shift, and I often saw the notes in them."

Law directly disputes Michael Schiavo's claim that Terri is in a Persistent Vegetative State, as well. In her affidavit, she detailed how she routinely provided Terri with a wet washcloth filled with ice chips to keep her mouth moistened and, on at least three occasions, fed Terri flavored gelatin.

"I personally saw her swallow the ice water and never saw her gag. [Another CAN] and I frequently put orange juice or apple juice in her washcloth to give her something nice to taste, which made her happy," Law recalled. "On three or four occasions I personally fed Terri small mouthfuls of Jell-O, which she was able to swallow and enjoyed immensely."

Nurse recalls Schiavo asking, 'When is that bitch gonna die?'

Carla Sauer Iyer was a Licensed Practical Nurse (LPN) at the same convalescent center in the mid 1990s, and also cared for Terri. She described Mr. Schiavo as being "focused on Terri's death.

"Michael [Schiavo] would say, 'When is she going to die? Has she died yet?' and 'When is that bitch going to die?'" Iyer charged. "Other statements which I recall him making include, 'Can't anything be done to accelerate her death, won't she ever die?' When she wouldn't die, Michael [Schiavo] would be furious."

Conversely, Iyer said that when she would have to call Schiavo to inform him of a downturn in Terri's condition, Schiavo would be elated.

"Michael would be visibly excited, thrilled even, hoping that she would die," Iyer recalled. "He would blurt out, 'I'm going to be rich,' and would talk about all the things he would buy when Terri died, which included a new car, a new boat and going to Europe, among other things."

Iyer also described incidents of Terri Schiavo talking, moving voluntarily and responding to external stimuli, descriptions that Iyer said were removed from Mrs. Schiavo's medical records. Both Law and Iyer reported Terri verbally communicating, also contradicting Michael Schiavo's claim that his wife was in a Persistent Vegetative State.

"During the time I cared for Terri, she formed words. I have heard her say 'mommy' from time to time, and 'momma,'" Law recalled. "She also said 'help me' a number of times."

Iyer described Terri as "alert and oriented," and said Michael Schiavo "systematically distorted" Terri's medical condition.

"Terri spoke on a regular basis while in my presence, saying such things as 'mommy' and 'help me,'" Iyer recalled. "'Help me' was, in fact, one of her most frequent utterances. I heard her say it hundreds of times."

Attorney named as 'non-party co-conspirator' to civil rights violations

The lawsuit filed by Terri's parents accuses Schiavo, both personally and in his official capacity as Terri's legal guardian, of violating the Americans with Disabilities Act for refusing to provide appropriate medical care and rehabilitation therapy, which are required by the law and for seeking to deprive her of nutrition and hydration, which is forbidden by the law.

George Felos, Michael Schiavo's attorney and a noted author and advocate in Florida's so-called "right to die" movement, is also named as a "non-party co-conspirator" in the lawsuit. The Schindlers allege that Schiavo, with Felos' help, sought to deprive Terri of her due process rights under the Fifth and 14th Amendments to the U.S. Constitution.

The suit charges that Terri was denied a guardian ad litem during most of the legal proceedings in which her husband sought to end her life and, the remainder of the time, suffered from "ineffective assistance of counsel, due process violations, and blatant conflict of interest with Terri's guardian, defendant Michael Schiavo," who is responsible for seeing that her legal interests are represented.

The only guardian ad litem and the only attorney to represent Terri prior to her parents' intervention in the case were removed when the attorney suggested that Michael Schiavo had a conflict of interest that prohibited him from serving as Terri's guardian.

The complaint also alleges that Schiavo and Felos conspired to deprive Terri of access to her priest in violation of the First Amendment and that the use of a 1999 Florida law in her case represented a Fifth Amendment due process violation of the constitutional prohibition on ex post facto legislation since Mrs. Schiavo had suffered her injury in 1990.

All of the cumulative rights violations are alleged under 42 USC 1983, which provides that, "Every person who, under color of any statute, ordinance, regulation, custom, or usage, of any State or Territory or the District of Columbia, subjects, or causes to be subjected, any citizen of the United States or other person within the jurisdiction thereof to the deprivation of any rights, privileges, or immunities secured by the Constitution and laws, shall be liable to the party injured in an action at law, suit in equity, or other proper proceeding for redress."

The hospice where Terri Schiavo is being kept and the hospital where her infection was supposed to have been treated are also accused of violating the Rehabilitation Act of 1973. That law requires that "handicapped" receive comparable medical care to that given able-bodied patients with similar conditions or injuries. Both facilities are subject to the Rehabilitation Act because they receive federal Medicare funding. The hospital is also charged with violating provisions of the Social Security law in 42 USC 1395dd, which requires the examination and appropriate treatment of emergency medical conditions and forbids the discharge of patients before their conditions are stabilized. The Schindlers believe their daughter was prematurely discharged from the hospital on more than one occasion in an attempt to hasten her death.

Felos accused the Schindlers of trying to subvert the Florida justice system.

"The purpose of this lawsuit is to invalidate the lower court's decision," Felos told the Tampa Tribune Tuesday.

U.S. District Judge Richard Lazzara gave the Schindlers ten days to file an amended version of their lawsuit and offered Felos an additional ten days to respond. He would not, however, block a hearing scheduled for Sept. 11, during which Pinellas-Pasco Florida Circuit Judge George Greer is expected to set a date for Terri Schiavo's feeding tube to be removed.

Attorneys for both sides told reporters after the emergency hearing Tuesday that they do not expect Greer to set that date any earlier than the 20-day period set by the federal court for the Schindlers' amended complaint and Felos' response.



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TOPICS: Culture/Society; Front Page News; News/Current Events
KEYWORDS: carlasaueriyer; carolynjohnson; felos; floridasuncoast; greer; heidilaw; hospice; richardpearse; schiavo; schindler; terri
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To: kimmie7
it really is. And folks aren't getting it.

You know, I have always thought the pro-life movement messed up with the "abortion kills children" or "abortion stops a beating heart" slogans.

I thought they should have taken a page from an old anti-drug slogan and used "abortion kills - people like you".

maybe with all the self-regarding boomers getting old & infirm this could still be a winner, using euthanasia in the place of abortion.
61 posted on 09/03/2003 10:53:56 PM PDT by jocon307 (Boy, even I am surprised at myself!)
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To: MHGinTN
I'm only saying THAT part of the story doesn't ring true. I don't know about this case...you don't either. My point is that it's incredulous that the husband would say such things to a nurse.
62 posted on 09/03/2003 10:56:53 PM PDT by Hildy
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To: GovernmentShrinker
It seemed odd to me that Schiavo would say those things, too.

But, since he might have been "acting the role" of a loving husband for all those years, he might have dropped his mask once in a great while, too.

63 posted on 09/03/2003 11:03:09 PM PDT by syriacus (Is Terri suffering from severe depression, on top of the insult to her brain?)
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To: GovernmentShrinker; floriduh voter
I am not going to "play" debate with you on this "issue".
I live here.
I have prayed for Terri for many years.
She is a real,living, human being I have never met, yet I am able to genuinely mourn and protest her state orchestrated murder.
GS, nothing in this case is "sudden".
If you think that CNAs and LPNs at Hospice organizations submit affidavits just for media attention...well.. you should STFU, and remain silent on issues (such an ugly word for a womans life)that you "feel" yourself to be educated on.
A woman, not accused of any crime, will be executed by court orders in the State of Florida, because she is not "healthy enough " and her spouse wants the balance of the money he "won" to make her altered existance bearable.
God save us.
And may God damn us if we choose to accept this as normal and "right".
64 posted on 09/03/2003 11:43:52 PM PDT by sarasmom (Pray for Terri Schiavo.)
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To: syriacus
Q: Why did you want to learn to be a nurse?
Michael Schiavo: Because I enjoy it and I want to learn more how to take care of Terri.

Q: You're a young man. Your life is ahead of you. When you look up the road, what do you see for yourself?
Michael Schiavo: See myself hopefully finishing school and taking care of my wife.

Q: Where do you want to take care of your wife?
Michael Schiavo: I want to bring her home.

Q: If you had the resources available to you, if you had the equipment and the people, would you do that?
Michael Schiavo: Yes, I would, in a heartbeat.

Q: How do you feel about being married to Terri now?
Michael Schiavo: I feel wonderful. She's my life and I wouldn't trade her for the world. I believe in my wedding vows.

Q: You believe in your wedding vows, what do you mean by that?
Michael Schiavo: I believe in the vows I took with my wife, through sickness, in health, for richer or poor. I married my wife because I love her and I want to spend the rest of my life with her. I'm going to do that.

These are quotes from the husband during the malpractice trial. Then, nine monthes after the money was awarded he made the announcement that "Terri told me she wouldn't want to be a burden", and he began to actively seek to have her feeding tube removed.

65 posted on 09/04/2003 3:36:44 AM PDT by yhwhsman ("Never give in--never, never, never, never, in nothing great or small..." -Sir Winston Churchill)
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To: sarasmom
I have prayed for Terri for many years.

Thankyou.

66 posted on 09/04/2003 3:39:43 AM PDT by yhwhsman ("Never give in--never, never, never, never, in nothing great or small..." -Sir Winston Churchill)
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To: yhwhsman
Bump for the morning crowd to see.
67 posted on 09/04/2003 4:34:23 AM PDT by MagnoliaMS
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To: MagnoliaMS
Bump - time is running out.
68 posted on 09/04/2003 5:28:50 AM PDT by iowamomforfreedom (Why is it illegal to starve an animal but not a human being?)
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To: sarasmom
Thanks for your post. My sentiments exactly! We have all got to remember this is Florida, so what should we expect other than Judges who will rule for anything unlawful and ungodly? Debating whether or not the CNA's are truthful is way past the point. This womans life is being taken away by our government. What right do they have to decide when we are all given the right to life, liberty and the pursuit of happiness?
69 posted on 09/04/2003 5:40:47 AM PDT by trustandobey (ONWARD CHRISTIAN SOLDIERS)
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To: trustandobey
What right do they have to decide....

Especially when the loving parents want to take care of Terri for the rest of her life!

It is clearly all about money going into the pockets of the "husband".

70 posted on 09/04/2003 6:31:33 AM PDT by mickie
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To: cherry
What I don't understand, is that here (at least in this area) if someone is on Hospice,
they
a. Have to have a terminal Dx and
b. Have to be reassessed every few months. I have never, ever seen anyone stay in Hospice more than 6 months.

Terry doesn't have a terminal Dx and she has been in Hospice 3 years! Something is just weird.

BTW,
Most of my personal (family) and professional experiences with Hospice have been very positive.
71 posted on 09/04/2003 7:38:16 AM PDT by najida (What handbasket? And where did you say we were going?)
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To: Canticle_of_Deborah
ping
72 posted on 09/04/2003 3:54:54 PM PDT by nickcarraway
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To: GovernmentShrinker
I have a close friend who is now an RN in FLA. I asked her about this case a few days ago. During her training, (several years ago) she came into contact with Terri. My friend tells me that at that time Terri was not in a persistent vegetative state, did indeed speak (said "love you" to her mother and "help me" to staff) and at that time a nurse told my friend that Terri's husband had indeed said, "When is this bitch going to die."
73 posted on 10/30/2003 3:01:18 AM PST by Tenya2112
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