In these cases people have to think out of the box and realize that apparently there is not an easy or available healing/treatment algorithm for doctors. Unfortunately it is up to the patient and helpers researching the problem to find a cure and a healing algorithm, for these people are after all the leaders in medical advances.
A cure may be available out there, but which is it? How to chose one? We have to stay open minded and be careful about so called miracle cures. One thing is for sure, getting to know the patogen is most important and this patogen should be thoroughly analyzed using different labs, even accross the world, and looking at registered diseases and patogens this problem might indicate. Yet only doctors can guide well the decisions in the end because only them can discern which disease it is or it is not. So many different diseases requiring completely different treatments have such similar symptoms, that it really makes the job difficult for teams of doctors and impossible for the layman like ourselves.
Lord, please have mercy on my sister as she fights for air and strength. Please show her Your loving mercy, and if she needs to go home, please make it as painless and comfortable as possible. In Your name, Amen.