[metmom]

It was parent’s persistence that helped identify and recognize Lyme Disease.

The medical community is not interested in actually trying to really treat or cure difficult cases.

Aside from this situation, my experience with an unusual health condition has also been the same. Nobody wants to do anything about it.

[Pete from Shawnee Mission]

Good parents advocate for their children. These parents were looking for something that would allow him to have life and Italy and the Vatican hospital were willing to provide that chance. (Here it would be St. Jude or Mayo Clinic?)

There are some research doctors that will address or try to treat rare diseases. Example:

Dr. Huda Zoghbi, pioneering neurologist at Baylor College of Medicine and Texas Children’s Hospital

She has done a lot of work on Rett syndrome, a disorder that affects girls and Women.