JustAmy, I’m praying for Richie.
I hope the parents are seeking a 2nd opinion, too.
Maybe they can call Kennedy Krieger in Baltimore, if they haven’t already...
In the video below, the little boy around Richie’s age is home now, but still on a breathing tube. The mom has been told to take him to the Kennedy Krieger Center in Baltimore:
https://www.msn.com/en-us/news/world/family-fights-to-save-son-from-polio-like-disease/vi-BBTPXAk
Kennedy Krieger Center - AFM:
https://www.kennedykrieger.org/patient-care/conditions/acute-flaccid-myelitis-afm
There are other news stories out there. One is a news story about a 4mo baby girl. That one mentions IVIG treatments for the AFM (but maybe Richie already receives them?)
Maybe parents of children with AFM connect and share info with each other...
Prayers continue...
Thank you. I have given this info to Grandpa.
If he doesn’t follow up, I will. :)