That is not normal behavior. My DD wants to sleep touching us or holding hands but she sleeps. Have you talked to a specialist, a neurologist. That lack of ability to sleep seems to be a deeper issue.
I will keep you and your family in my prayers.
I’ll post responses to everyone, individually.
Thank you for your prayers and concerns.. At night she’ll “relax” but is always playing with my hand. She’ll do it for all hours of the night except the ones that she is actually sleeping.
I’m about to go to bed, and I’ll hold her hands for about 2 hours. During that time, I’ll slip my hand away and see how long it lasts. Until at some point she’s asleep enough for me to get some.
She’s healthy though. She just doesn’t really sleep deeply too often.