Posted on 05/20/2014 7:12:49 PM PDT by kathsua
The poor thing. Prayers offered for her.
OMG.
Poor baby!
How can she survive on just squash??
Prayers for her.
:(
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She has mine.
You got it!
It’s the same way Celiac Disease responds to gluten. I nearly lost my wife in 2005 with the same exact set of symptoms. God bless that little one.
Prayers.
Prayers for this precious child and her family!
My adult daughter also has this, but to a much lesser extent. She used to drink Pepto Bismol like it was candy before she was diagnosed. It helped only some. Her “allergy” is to anything with barley in it. She does remarkably well in taking care of herself so far.
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Thanks for posting...what a tragic story. I hope and pray the doctors can find a way for the poor darling to have a somewhat normal life. I can’t imagine the difficulties her Mom & Dad must be experiencing.
How fortunate the doctor was able to see the white patches in her throat and make the diagnosis. It’s unusual for such rare diseases to be diagnosed at all...most docs go through their entire career without seeing such cases.
My niece had really strange eating habits growing up (essentially only dry Cheerios and slices of American cheese). The docs were never able to identify any underlying problems.
Prayers for that poor child, and her family.
May God heal her.
prayers up.
“However this baby needs our prayers.”
And she will get them, I assure you.
Mine too.
She’s in our prayers. May G-D be with this child and her family.
My prayers are out. My sister had some sort of eating issue when she was born, she could not tolerate anything- even my mother’s breast milk. Doctors told my parents she would not live and they should take her home and love her until she died- which the doctors expected to happen in a matter of days. My sister was born at the end of World War II and there were not a lot of options. A Basque sheepherder told my dad to try goat’s milk; fresh goat’s milk as in milk the goat and feed it right to her. That goat’s milk was a miracle, she was able to grow and thrive on it. I am sure whatever my sister had was not the same as this baby but things like that would be worth a try. You just never know.
I know a little boy with something similar. He is one of only 5 in the US with it. I cannot recall what it is exactly, but it is horrible to watch a child suffer. He is able to eat now, but it is limited and took years before he could tolerate actual eating.
Prayers up for this little girl and her family.
bump for prayer
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