Yes I have a son who is 21. He will never drive a car or obtain employment and will need support for the rest of his life.
We and many other families simply don't know what to do when we are to old to care for them. The idea of shipping him off to some group home fills me with dread.
The state, local and federal programs work about as well as ObamaCare.
I just don't want him to end up living under some overpass.
I just don't know what we are going to do. As of now there are no good options and the prospects are bleak.
They still don't know what causes it or how to effectively treat it. All the medical docs can do is throw different meds at him.
Bmkflr
I do wish that society would approach some things differently. I can imagine something like an almshouse where people could go and be cared for. Food, a bed, some simple level of care. It's better than living under an overpass.
Unfortunately, many people feel that a sparkling hospital setting, with a big, highly-trained staff, lots of equipment and lots of expensive medication is the only way to go. And then it's either "We're taking everyone's money in order to pay for this" or else "We just can't afford to help you".
I'd like to see some sort of middle ground where people can just be looked after. But that almost seems illegal these days in which the only acceptable solutions are Big Government solutions.
Usurper, that is my greatest fear for my GS also. No matter how much progress he makes, unless God intervenes and there is a miracle I don’t know what will happen to him but it doesn’t look good.