I swear by that hospital....they did so much for my wife as she fought cancer...and they do much good for children.
They're up in Sacramento, and well plugged into a large network of neurologists, etc.....as well, they are hooking up with a research team from St. Louis. This will be for study purposes only, however, as this "EEME" condition is considered hopeless. It's very complicated, and fortunately for others, extremely rare.