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This post is directed at many of the replies I have been reading.
My daughter is very severe and at around age 15 I did pull her out of school because it wasn't helping her in any way. Hers was a special ed school. I am not sure what school this girl goes to but during school they usually receive OT, PT, ST, and other needed therapies. Even if they can't interact with the other children (and I am speaking of special ed children) they can enjoy the atmosphere of the classroom.

Also there are many states that do not allow home education for children with IEP's. Luckily with the support of my daughters neurologist and the director of her school I kept her home under the homeschooling laws.

I have almost lost my daughter more times than I care to remember due to seizures and stop breathing. I have talked with my family members and we have agreed not to do cpr on her. She has suffered for 20 years and her quality of life is low. She is 24/7 total care. If we were to revive her with cpr how much brain damage can we expect to have occured? She already functions around 8 months old mentally. Some testing shows 3 months.

For me it would be selfish on our part to interfere and prolong her life.

That may seem cold to some but I love my daughter so much and hate watching her suffer. One of my daughters is a nurse and she also agrees with my decision. It is a very hard decision to make and discuss with family members about.
If she was still in school I would hope they would respect my wishes.

Thank you for bringing your painful personal experience to this thread. Though my position isn’t based on first hand experience, as yours unfortunately is, I come to the same conclusion. And as a taxpayer, I would be very angry indeed if any taxpayer-supported institution caring for your daughter didn’t respect your wishes that she not be artificially resuscitated again. You know much better than any government bureaucracy or self-appointed busybodies what’s the most compassionate choice for your daughter.

Thank you for your informative post. God bless you, your daughter, and your family.

Not that it matters one way or another, but, I don’t disagree with your decisions under your particular circumstances.

Of course, no two cases are exactly the same, and, this article unfortunately doesn’t provide enough information for anything much more than conjecture. It raises more questions than it answers.

I don’t have a problem with the parents sending her to school, I have a problem with the parents sending her to school when her death is so imminent that they send her with a DNR.

That child should be able to die at home with her family around her not while being wheeled down the hall to a nurse’s office, or in a classroom or anywhere else where her parents may not be.

If her mother was willing to go to school with her that would be fine as well but to send the child off not knowing if you’ll ever see her alive again is not acceptable.