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To: Jorge
But don't let the medical experts affect your judgement.

You know better, don't ya?
~~~~~~~~~~~~~~~~~~~~~~~~~
Hey Jorge, Let me tell you a story.

The rest of you who have heard my daughters story, go ahead and read on to the next post.. Jorge and I have some things to discuss about the "medical knowledge" of doctors.

My daughter, at 7 months in utero, was diagnosed with Pompes Disease, now, assuming you dont know anything about this disease, it is a torturous vile disease, death is the result. They told me that my daughter would die within 2 weeks in utero, and that I should "merficully" End her life thru an abortion. I chose to get a second opinion. That doctor told me that my daughter did not have this disease, but did not know what she had, he also agreed that her life would end before she was born and that I should not do anything "Extra Ordinary" to try to preserve this fetus. I disagreed and did my own research. I requested to be put on Digoxin, the only heart medication that passed thru the placenta. Emmas heart, at this point, was 75% of her chest cavity. It was a long shot, but it was a still a shot. My daughter was in the last stages of heart failure and I was not willing to write her off just yet. I spent the rest of my pregancy in the hospital, on my side, 4 hours away from my family (my second opinion was in a different city). My daughter was born via Emergency C~section, which again was discouraged by my doctors, because I was putting myself thru an "uneeded operation" for a child who would die during or shortly after birth. I again disagreed and off to surgery we went. While in surgery, a nurse asked me to sign DNR papers, again, i refused. My daughter was born, granted she only whimpered, but she was alive. They asked me, while they were during CPR on her whether or not I wanted to put her on life support, i had just told them that I would not sign DNR papers, so I thought i had made myself very clear. I yelled at the top of my lungs "YES, for the last time I want my child to live".

During the next 15 days, my daughter was on an ocsillator (high frequency vent, breathing over 200 breaths a minute mechanically). I was told she would die every day, was instructed by doctors daily that i should turn the machines off, that I should let her die peacefully, but you see, I knew my daughter, I knew her better than anyone else. I knew that this little girl had a fight in her that amazed me, and until she gave me the permission to let her die, I would fight for her to live. In those two weeks, I was told my daughter had over 15 different diseases or syndromes, all of which were fatal and WRONG. Every day I woke up I knew that another test result would prove these "medical professionals" wrong.

After 15 days of sitting in a level 3 NICU, the doctors finally came to me and said "Mrs.George, we dont think your daughter is going to die, we need to transport her to another fascility"... my response was "Ya think? Ive been telling you this for over 2 weeks." Emma was transported to ACH in St. Petersburg Florida where she was immediately listed for transplant. We were told that the average wait for transplant for Emmas size and blood type was 2 weeks, but that they did not feel that she would make it that long. She lasted 4 months waiting for her new heart. She suffered a level 3 heartblock, heart rate was in the 20s, after having her heart shocked she opened her eyes and looked around as if to say "why the heck are you shocking me with that thing?" and started playing with her broviac line.

My daughter, who was condemned to death 2 months before her birth, waited 4.5 months on life support for a donor heart, and now is a beautiful little two year old who happens to be fed by a G~tube 21.5 hours a day.

Let me tell you about the "medical professionals". If I had listened to them, my daughter would have died long long ago. Do I trust their judgement, you bet your arse I do, Do I blindly hand my child over to them, not in a million years. They are not God, they make mistakes. In My daughters 2 years of life, I can count atleast 25 doctors who got it wrong.

Blind faith is not something I give away freely. The best of the best doctors make mistakes daily.

I am glad to see that you put such so much stock in the words of a mere mortal, I pray that you never are put in the position to have your faith shattered when they are wrong about one of your loved ones.

Blessings,
~Heather
www.Emmas2Hearts.com

1,263 posted on 10/22/2003 10:42:42 AM PDT by Florida Mama (www.Emmas2Hearts.com)
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To: Florida Mama
Emma Grace
1,264 posted on 10/22/2003 10:43:28 AM PDT by Florida Mama (www.Emmas2Hearts.com)
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To: Florida Mama
Wow! What a story. Thanks for posting it.

Emma is a precious doll.
1,268 posted on 10/22/2003 10:50:00 AM PDT by katnip (It is when a people forget God that tyrants forge their chains)
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To: Florida Mama
Lord's richest blessings to you and Emma and your entire family!

Thank you for sharing that. Sometime I'll tell you about my sweet little Hannah Marie. She only made it to 7 months, but she touched a whole bunch of lives along the way, I assure you.

EV
1,281 posted on 10/22/2003 11:02:17 AM PDT by EternalVigilance
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To: Florida Mama
Thank you for your precious story about the life of your precious child. May God bless her with long and happy life and eternity.
1,315 posted on 10/22/2003 11:26:26 AM PDT by AFPhys (((PRAYING for: President Bush & advisors, troops & families, Americans)))
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To: Florida Mama
Wow. I had not heard the story of your daughter either. What an amazing miracle. Will she ever get to be off the feeding tube? What is her prognosis at this point in time? Forgive my ignorance and I hope I am not being insensitive to ask. I'm not very familiar with the advances that have been made in recent years with heart transplants.
1,468 posted on 10/22/2003 3:59:28 PM PDT by sweetliberty ("Having the right to do a thing is not at all the same thing as being right in doing it.")
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