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Thanks for the link I'll read it later this evening. And thanks for the prayers & I'll keep you in mine. To be honest I consider myself lucky that I have what I have as I feared much worse was going on.

I was working in a nursing home as a maintenance mechanic. I saw patients who had everything from Dementia to terminal cancer, MS, even STD's dieing. I thought it was either a brain tumor or MS. Think of the disorder as the brain being a computer and the processor being overworked. The computer freezes and programs shut down. Programs in my case being shut down are ones that say where I am, how I got there, where I am going, how long have I been, going, what time is it. Sensory overload does it. It also causes the violent spasms or seizures.

If I don't get the spasms stopped soon enough the system crashes for about 20-30 minutes even though I am 100% conscious and aware of it. I'm thankful for the miracle drug Xanax which works fast. For several years I was mis diagnosed with General Anxiety Disorder and given meds that only made matters worse.

My first full blown attack happened while on the interstate driving 75 MPH and my wife was with me. GOD created the human brain for survival and it has capabilities which take over when certain things happen. I've had about a dozen of such attacks and not gotten hurt. I haven't had one in several years because I head it off with either medication or if at home picking up my guitar and playing it till the spasms stop.

Considering what it could have been this is more like an annoyance. It won't kill me but it is lifestyle altering. But I have helped others whom this happens too and they don't understand what is happening too them. I tell them what to have the doctors check for which is Vestibular and sensory processing dysfunction. I'm also over 50% deaf now and that has lessened the spasms as well. I was born with sensory issues like single eye functional and Inner Ear issues. At age 34 it all reached a breaking point. There is no name for the disorder as such as it is likely several interacting on each other & hitting at once.

Mine is MCAD, a mast cell activation disorder.

It is also lifestyle altering and I suspect there is another factor involved in this based on my research into it but cannot get any doctors to address my suspicion.

I’ve always reacted to foods with eczema and (in hindsight) other reactions. Spent my whole life being told I was a hypochondriac.

In my late 30’s, the condition started to deteriorate and my reactions to foods got worse to the point where some foods started dropping out of my diet.

It continued over the last 17 year or so getting progressively worse until I am to the point of being able to really only eat oats and chicken, beef, lamb, or venison.

I can eat a mouthful of some other foods on occasion, but not nearly enough to keep me alive should the oats and meat go too. I have no clue if they will also eventually drop out of my diet.

There is NOTHING medical science can do for it. I do have medicines they are having me on which do not appear to be making any difference. Even if they did, it would just be managing it for a while longer.

So, I’m looking at three possible scenarios.

1) God heals me.
2) Nothing changes and I live like this the rest of my life, another 20-30 years.
3) It finally progresses and takes me out.

#1 is the preferred option.

IMO, #2 is the worst case scenario.