You need to get to a good heart specialist immediately if you have not already done so. My wife has congestive heart failure and time is of the essence. Over the past three years she has made a marvelous if not miraculous recovery but the secret is a good heart doctor!!!
I agree. It is NOT a death sentence. My father lived for almost ten years after first finding out.
There are specialists out there that will see you ASAP, even if your insurance is not the greatest.
Keep fighting, and we will keep praying!