What I am curious about is if this is a normal treatment for such ailments or are these parents into alternative/holistc medicine who try to treat every ailment with herbs and spices. Seems to me, seizures would require something a little more potent than pot.
Todays pot aint like the stuff we smoked in the 60s and 70s its super weed
No need to conflate this with layabouts toking themselves into a fog.
Was this regimen Rxed by a neurologist or a back yard pot raiser/booster!
I am guessing there are other treatments just not as effective... with side effects that are real bad. my bet that the alternative treatment from CBD oils and the THC oil is phenobarbital. the meds real nasty and is dosing the kid with a medication that is detrimental to cognitive development in the child... 30 years ago I dated a girl that was on phenobarbital and I would not wish it on anyone. she would get dosed with the med and loose about 20 points of IQ and then as the medication wore of get slowly smarter till suddenly she was having seizures. we could not even go on a date with out her getting a seizure....I wish the parents luck in the court system.
For your interest.
My bookkeepers dad, a hard nose X-cop is now taking the CBD form for his seizures after his other meds didn’t work as well.
I use it topically on my shoulder, back and knees for pain relief and no longer take Motrin or other prescription anti inflammatory meds.
My oldest daughter takes it for anxiety.
None of us are smoking it and the CBD variety doesn’t get you stoned anyway.
Amazing stuff with many beneficial uses.
I look at it like water .... It can drown you but that doesn’t mean it’s bad
Stupid bureaucrats trying to write a one-size-fits-all rule, so they don’t need to think, or take any responsibility.
They should be able to determine themselves this girl’s case from their own local experience and investigation and manage it easily, whatever they decide.
Of course, we have removed authority for schools from locally elected officials and parents, so we shouldn’t be surprised all school bureaucrats are focused mostly on ass-covering.
Indeed like it’s the only medicine that works sounds like another story to pimp pot.
“CBD is more like maintenance,” Jana Adams said. “The THC actually works like a rescue medication. It stops (the seizures) within three minutes, and that’s really the life-saving part for us.”
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Keep the child at home. Regardless of what meds she takes, keep her at home. If her life hangs in the balance on a daily basis - then why take a chance on being anywhere where access to her seizure medicine may be an issue.
Keep the child at home.
This girl has enough health issues that she SHOULD be home schooled, period.
Why would a family that purportedly cares for its daughter “fight” to get her into public school? If they actually cared about her education and future they would enrol her in private school or, best choice, home school her. If they care, rather, about making a political statement that’s fine but they shouldn’t do it to the educational degradation of their daughter.
https://www.dravetfoundation.org/what-is-dravet-syndrome/
Not all seizures are easy to control, nor do they respond to the drugs, then you have a issue of drug reactions.
This mom had best Home School. She has had training to treat her daughter seizures, where as the school personnel have not. What if she were on the Playground, and no trained teacher around? Every other child would have to be trained to go get help, and seizures are scary to a 5 yr old.
As an epileptologist I can tell you this is a real thing. Trials have been done showing its effectiveness in Dravet syndrome (and Lennox-Gastaut syndrome as well) and a pharmacologic product Epidiolex was recently approved by the FDA though it remains to be scheduled by the DEA- should happen in the next 3 months (if it happens at all).