Posted on 09/09/2008 7:32:07 AM PDT by stillafreemind
While growing up LeAnne Rimes remembers the way she felt with her body covered with psoriasis. At times, the country singing star's body was 80% covered with it. Psoriasis can crack and bleed. It is painful, not only physically, but mentally. She has felt the pain and depression and most of all, the need to hide. Stophiding.org was formed to fight against the desire psoriasis patients have to hide from people.
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My mom had it.
It was awful. Open sores all the time. It was sad.
Thanks so much for the help..I hope FR will amend my link. LeAnn is just a wonderful human being.
I remember way back when she was like 12 or 14 she sang on David Letterman and the maturity of her voice and vocal ability just blew me away. I look at her and then I look at somebody like Britney Spears and I just have to laugh at Spears manufactured voice. Britney Spears? - please!
Now Christina Aguilera (sic) can sing. She may have gone all skanky but she can sing and blows Spears away.
“covered 80% of her body!”
Poor thing, good for standing up to it.
I’ve had psoriasis since 2003. It’s no fun, although when compared to the other autoimmune diseases one can get, I’ve always counted myself very lucky.
Since July I’ve been taking a relatively new drug that helps quite a bit; unfortunately, if I stop taking it, the symptoms will come back.
I am so sorry you suffer from this. I saw her being interviewed by Dr. Manny and she said she went through A LOT of treatments until they found one that worked for her. She is such an inspiration.
Stay well.
My grand daughter had it, doctors couldn’t do much. My wife chewed some fresh, wild Echinacea root and put the pulp on the affected area on my grand daughter’s leg as a poultice. This was repeated a few times over a couple of weeks. The patch cleared up, and my granddaughter has not had a problem since.
I do not know it this will work for everyone (you’d have to chew your own!), and I am not marketing anything, but perhaps it can help someone out there.
Psoriasis is awful. I have it and I have to wear jeans all the time. My legs are covered with it. I use over the counter meds that have tamed it down a bit. It was all over my body a few years ago. Now it’s legs and elbows and head.
I’ve had it since I was 21 years old. My mom had it too.
25% coverage at times. I take a variety of meds...the most effective being the Embrel shot twice a week...
My sister has it and also contracted psoriatic arthritis, a common side effect of severe psoriasis. She was completely disabled at one point. She has been in many clinical trials for new drugs and some have helped. Her stress level also contributes to it.
My brother has psoriasis as well as the accompanying arthritis and it’s pretty rotten. He has nearly indomitable spirit which I greatly admire. Age: 66. He has it primarily on his knees, lower legs, and elbows and scalp. I wouldn’t say it covers any huge proportion of his body, you’d not be awed by whatever number that is, but it looks horrible.
He has been getting UV light treatments for the previously uncontrollable breakouts of the thing and those, from he has indicated, has helped him. There is apparently a specific frequency of UV light that helps (for some) to control the outbreaks.
Have you tried sunbathing? Have you tried soaking in Dead Sea salt baths?
My daugther suffers from urticaria. She is 16. Some days she has trouble walking since they might appear on her feet.
She seems to be a real class act. And her voice is beautiful.
I do sit in the sun in my backyard on a daily basis. I do believe that is what has helped me alot.
Try cutting down the carbohydrates in your diet.
My wife has severe psoriasis over at least 80% of her body and is on the liver transplant list (Hep C from a contaminated transfusion 25 years ago). The psoriasis and psoriatic arthritis have more of an effect on her daily quality of life than her failing liver. Most psoriasis drugs are off-limits because of their liver toxicity. Her transplant surgeons have never had a patient with severe psoriasis. A tough situation; she’s a tough woman but it’s wearing her down.
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