This is exactly where I find myself. I have a condition (gastric varices) that have bled twice in a 6 month period, luckily it has stopped on it’s own. Next time I may not be so lucky. A drug used in Canada, Europe and even the Middle East is not approved here. It can be administered in a rather simple outpatient procedure. It looks as if I may have to go to Canada while my own government sits on its hands.
Then it should be your choice to try something else. The limit on government control should stop at making sure you are informed of all of the risks involved. Not whether it should be administered. That’s up to your Medical professional. And you.