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TXBSAFH'S DAUGHTER ANASTASIA IS VERY ILL AGAIN. (UPDATED SEE POST #609)
NOW | ME

Posted on 03/22/2006 1:53:09 PM PST by TXBSAFH

Dear All,

I am sorry to bother you all again but something has come up that has me obviously scare witless. My daughter Anastasia is having what the peditrician thinks are seizures. She goes limp and her eyes roll back in her head. These last only a minute or two but she is not eating well either. There is a remote possiblity that this is related to a new med she is taking for her reflux. Of course we are taking her off this now. I am sorry to bother you all again but this is the thrid major medical problem since Christmas with her. Thank you all and God Bless YOU.


TOPICS: Miscellaneous; US: Massachusetts; US: New Hampshire; US: Texas
KEYWORDS: faith; love; prayer; prayerrequest
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To: TXBSAFH

Prayers up for your precious daughter.


41 posted on 03/22/2006 2:16:56 PM PST by kitkat (Democrats: Millions for politics, but not one cent for national defense.)
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To: TXBSAFH

I am praying for Anastasia.


42 posted on 03/22/2006 2:17:44 PM PST by alnick
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To: TXBSAFH

We will continue to pray for Anastasia's health and well-being. Also for you and the rest of your family.


43 posted on 03/22/2006 2:17:52 PM PST by Ol' Sox
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To: TXBSAFH

There are doctors that specialize in epilepsy... now, I am not saying that is what your daughter has. But I am trying to say that medicine can be VERY specified when it comes to diagnosing and treating seizures and that even a neurologist can specify his practice even further as to be an expert on seizure disorder. I know the seizures are terrible to watch. (My sister has them.) But, please know that your daughter may not really be in any discomfort, even though it looks so dramatic. There are many anti-convulsants available.

Thinking of you.


44 posted on 03/22/2006 2:18:02 PM PST by Pan_Yans Wife ("Death is better, a milder fate than tyranny. "--Aeschylus)
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To: TXBSAFH

Praying hard. You are getting good advice. Push, ask, do whatever it takes.


45 posted on 03/22/2006 2:18:47 PM PST by Yaelle
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To: TXBSAFH
Prayers up for you and yours. As others have said, get her to a neurologist as soon as you can. My wife suffers from seizures so I feel what you're going thru. Hang in there, they can do wonderful things today.
46 posted on 03/22/2006 2:19:12 PM PST by Shadow Deamon
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To: TXBSAFH

never, ever, a bother, TXBSAFH. We've followed you and prayed for you through your wife's illness during pregnancy, the girls' birth, their intervening ailments and now this .. they are always in our prayers. You all are.

Blessings on Anastasia and your whole family.


47 posted on 03/22/2006 2:21:21 PM PST by EDINVA
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To: TXBSAFH

My friend, Hang in there!....as always you and your family are in my thoughts and prayers.


48 posted on 03/22/2006 2:22:00 PM PST by TexanByBirth
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To: TXBSAFH

A. Thoughts and prayers for your daughter.

B. NO NEED for apologies.

C. Get her a cerebral MRI ASAP. My 3-yr-old daughter had some minor seizures and testing ultimately revealed that she has a "previously unseen mutation of the TS-21 gene". I.E. She has tuberous sclerosis.

Since that diagnosis, we immediately put her on Trileptal (anti-seizure med) and she's now been seizure-free for over a year now. Her development was not impacted - she's a bright, curious, gorgeous little girl (just like yours, I'm sure!)

Don't panic and don't worry...but do seek advanced diagnosis ASAP. Don't settle for X-Rays (largely useless) and CAT scans. Insist on an MRI!


49 posted on 03/22/2006 2:26:09 PM PST by Blzbba (Sub sole nihil novi est)
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To: TXBSAFH

Prayers and good thoughts coming your way from California! No bother at all! Please let us know how she's doing!


50 posted on 03/22/2006 2:27:47 PM PST by Primetimedonna (Charter member of the San Francisco SnowFlakes! We love our Tony! It's SAN FRANCISCO, not Frisco.)
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To: TXBSAFH
Prayers for your whole family.
51 posted on 03/22/2006 2:28:51 PM PST by Diva Betsy Ross (Embrace peace- Hug an American soldier- the real peace keepers.)
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To: TXBSAFH
My daughter Anastasia is having what the peditrician thinks are seizures.

I'm so sorry to hear this--my presence has been pretty spotty but I know your family has been through a rough time.

My prayers are with Anastasia.

52 posted on 03/22/2006 2:31:39 PM PST by proud American in Canada (Come on, Gary, act! (I finally saw Team America and am still laughing))
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To: TXBSAFH

Our prayers are with you, but please, take your little daughter to a neurologist... The more "experts" you see, the better you will feel... Sometimes, these new "experts" do expose "new" things...


53 posted on 03/22/2006 2:33:31 PM PST by Argentine-Firecracker (Argentine Firecracker)
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To: TXBSAFH

Our prayers are with you, but please, take your little daughter to a neurologist... The more "experts" you see, the better you will feel... Sometimes, these new "experts" do expose "new" things...


54 posted on 03/22/2006 2:34:56 PM PST by Argentine-Firecracker (Argentine Firecracker)
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To: TXBSAFH
I agree with the previous reply--get her to the closest (Texas?) children's medical hospital -preferably a teaching hospital.You can get her into the Emergency Department for seizures- then you have access to a good assessment and referral to one of their neurologists. I don't think hearing it "may be a medicine for reflux" is enough of an answer for you if she continues to have the symptoms you are describing. As a mother of a complex and chronically ill child I can tell you to keep trying to pursue getting the right help--the health care system is complex and sometimes it is hard to find the help you need. I am also a nurse at a hospital with a good medical school--and these are the best places to get help for difficult health problems such as your daughter has. You are her advocate--don't be shy about going over your pediatrician- they are not always good at managing complex health problems and sometimes they do not make the referral to a specialist when they should. Be strong and I wish you well finding the help you and your daughter need!
55 posted on 03/22/2006 2:35:31 PM PST by michgirl (warrioress against rats and fleas)
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To: TXBSAFH

Prayers for your daughter


56 posted on 03/22/2006 2:35:34 PM PST by not-alone
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To: TXBSAFH; trussell
Heavenly Father, we return to thank You for our FReeper family, so earnest to join in prayer, one for another. May it be, Merciful Father, that little Annie's seizures are so easily treatable ... direct TX and his wife to the medical team whom You have chosen to bring about her healing. Comfort and strengthen the parents who agonize over her condition ... let the seizures diminish without lasting consequence. Thank You for the words of wisdom expressed to Annie's parents ... thank You for leading them in the way they should go. In the Name of the Lord Jesus Christ we praise You, Amen ...
57 posted on 03/22/2006 2:35:58 PM PST by Pegita ('Tis so sweet to trust in Jesus, just to take Him at His Word ...)
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To: TXBSAFH

Prayers continue


58 posted on 03/22/2006 2:36:31 PM PST by Tribune7
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To: TXBSAFH
Please investigate the use of high fat diets for cases like this. I do not know how old she is but young children should not have reflux NOR take reflux drugs.

Find out if she is allergic to wheat!
59 posted on 03/22/2006 2:47:38 PM PST by msnimje (SAMMY for SANDY --- THAT IS WHAT I CALL A GOOD TRADE!!!)
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To: TXBSAFH

prayers said, honey. Two of my children had seizure episodes, and all turned out well.

Mrs VS


60 posted on 03/22/2006 2:47:54 PM PST by VeritatisSplendor
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