[Beach_Babe]

Good morning, friends!

Today's the big day!!! We get Marilyn out of the hospital ... and up to Shands ... if all goes as planned.

I finally was able to get some photos of her uploaded:

Marilyn at work

I have a picture of her on her horse, but when I tried to post it here, it was HUGE!!!! Click here to take a look.

Mary Ann, they made me sign a "Do Not Resuscitate" order yesterday, before they'd sign the discharge paper. I added on the bottom that they should notify me immediately if there was a change in her condition, to allow me to withdraw the order, if necessary.

On another note, my brother is with Cornell University Medical College ... not Center. And he's not a mere librarian --- he's a department head. Sorry, bro! (I think he's been following this thread.)

We told the Case Manager our plan ... she told us not to say anything to anyone else. And yesterday, she lamented that she wished we hadn't said anything to her. Conflict of interest, I suppose.

[Beach_Babe]

I meant to add that Marilyn slept the entire time I was at the hospital yesterday. She's been itching and they had given her Benedryl.

Thank you, all, for all your support, suggestions, prayers, and everything else. I can never express how much I appreciate it and I am so thankful to each and every one of you.

[Vets_Husband_and_Wife]

BUMP post 176

Thanks for putting a face on Marilyn. What a lovely young woman :o)

EVERYONE, I have my granchildren here celebrating Christmas with them. If you could please PING Marilyns picture to all the prayer warriors, I would really appreciate it.

Beach_Babe;
I don't see how they can "make" you sign a DNR. Even when I worked Hospice, we couldn't MAKE someone sign one. We sure suggested it. Why make someone who is terminal go through the dying process more than ONCE? Families understood this.

But what a strange request.

You know, if Marilyn is in Liver failure from HepC, people with HepC get Liver transplants all the time. It is the main reason for Liver Transplants.

I just pray you get her in Shands soon. Unless I'm missing something here, this whole thing has been so bizarre.

From everything you've described, Oncala has a lot of splainin to do!!

I'd love to know how her Liver was doing before her spinal abcess. I'd also LOVE to hear a Liver specialist tell a board how her LIVER would pre this past month, would have tolerated a surgery vs. what they have just put her through!!

Sending TONS of prayers.

How did things go for Claudia?

I'm on a laptop..(first time...ugh!!)

(Art's new Christmas gift...it's a wireless thingie.. now we can both Freep at the same time!)

The grandchildren are here for the weekend to celebrate an early Christmas. They are going out of town to be with my parents, their great grandparents. So, we are celebrating early. So I probably won't be checking in again until really late tomorrow night too.

Until then, I will be praying like mad!!

I just want you to know that I have had many friends who have been as sick as Marilyn and pulled through. Liver patients are ALWAYS this sick before they are transplanted.

The itching is normal for a liver patient too. BTW, the Benedryl isn't our medicine of choice either. Atarax is. It works better on Liver patients. It will make her sleepy too. See if you can get to a Liver transplant support group. There are a TON of them. There should be some listed online. Or Call the hospital in your area that does transplants and ask for the liver support groups phone numbers. The patients are AWESOME for knowing this stuff.

And KNOWLEDGE is key!!

More later FRiend!!!