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BUMP post 176

Thanks for putting a face on Marilyn. What a lovely young woman :o)

EVERYONE, I have my granchildren here celebrating Christmas with them. If you could please PING Marilyns picture to all the prayer warriors, I would really appreciate it.

Beach_Babe;
I don't see how they can "make" you sign a DNR. Even when I worked Hospice, we couldn't MAKE someone sign one. We sure suggested it. Why make someone who is terminal go through the dying process more than ONCE? Families understood this.

But what a strange request.

You know, if Marilyn is in Liver failure from HepC, people with HepC get Liver transplants all the time. It is the main reason for Liver Transplants.

I just pray you get her in Shands soon. Unless I'm missing something here, this whole thing has been so bizarre.

From everything you've described, Oncala has a lot of splainin to do!!

I'd love to know how her Liver was doing before her spinal abcess. I'd also LOVE to hear a Liver specialist tell a board how her LIVER would pre this past month, would have tolerated a surgery vs. what they have just put her through!!

Sending TONS of prayers.

How did things go for Claudia?

I'm on a laptop..(first time...ugh!!)

(Art's new Christmas gift...it's a wireless thingie.. now we can both Freep at the same time!)

The grandchildren are here for the weekend to celebrate an early Christmas. They are going out of town to be with my parents, their great grandparents. So, we are celebrating early. So I probably won't be checking in again until really late tomorrow night too.

Until then, I will be praying like mad!!

I just want you to know that I have had many friends who have been as sick as Marilyn and pulled through. Liver patients are ALWAYS this sick before they are transplanted.

The itching is normal for a liver patient too. BTW, the Benedryl isn't our medicine of choice either. Atarax is. It works better on Liver patients. It will make her sleepy too. See if you can get to a Liver transplant support group. There are a TON of them. There should be some listed online. Or Call the hospital in your area that does transplants and ask for the liver support groups phone numbers. The patients are AWESOME for knowing this stuff.

And KNOWLEDGE is key!!

More later FRiend!!!

Nothing from Beach_Babe yesterday. I'm sure they are struggling to beat the beauracracy.

FYI, they MADE Alice (Beach_Babe) sign a DO NOT RESUSCITATE order when checking Marilyn out of Oncalla!!!

I worked hospice as a volunteer. While we suggested this to our TERMINAL patients, we never made this "mandatory". As I said, it was HIGHLY recommended, as they were definitely terminal (Why make someone die twice)!

Unless Marilyns spinal abcess is a reason that would disqualify her from transplant, Marilyns Hep/C is the LEADING reason for Liver Transplant!!

Why isn't she on a Transplant list already considering the rapid deterioration of her liver condition? (Which must be happening if they are suggesting a DNR).

Shands is (or was from what I can see on my search tool) a Liver Transplant hospital!!

I also have known people who had NO JOB, and NO INSURANCE who got liver transplants. Marilyn is falling through the cracks, and I do not feel she has been served well, or treated right by Oncalla and her doctors there.

I'm saying this as a Liver patient who has known a lot of people who have had liver transplants and been liver patients.

But even more so, I have honestly never heard of a liver patient being so mistreated. To have had her liver disease so ignored to the point that they jeopardized her liver like this, is just heartbreaking. You cannot live without your liver. I'm not a doctor, but a surgery would have been much quicker and kinder to Marilyn and her liver.

That being said,.. I just PRAY to God they get her into SHANDS AND QUICK.

Perhaps with the PROPER medical attention, this can all be turned around without the need for a liver transplant.

I honestly believe God sent Claudia to this family. Now I pray we can have a resolution to all the harm that has been done.

Please.. KEEP PRAYING!!

Please ping your lists so we can send up some POWER THROUGH PRAYER to our FATHER in heaven!!!!!

Thanks