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Commentary: When a feeding tube borders on the barbaric
Minneapolis Star Tribune ^ | May 28, 1997 | Dr. Ronald Cranford, MD

Posted on 10/20/2003 9:08:00 PM PDT by Chancellor Palpatine

Just a few decades ago cases of brain death, vegetative state, and locked-in syndrome were rare. These days, medicine's "therapeutic triumphs" have made these neurologic conditions rather frequent. For all its power to restore life and health, we now realize, modern medicine also has great potential for prolonging a dehumanizing existence for the patient.

We realize this, and we're starting to deal with it. In landmark legal cases from Karen Quinlan to Nancy Cruzan, society has come to see that it's sometimes sensible to stop treatment in patients lingering in permanent vegetative states (PVS). That progress has been hard-won and welcome. But anybody who thought that the dilemmas of PVS were troublesome hasn't seen anything yet.

The United States has thousands or tens of thousands of patients in vegetative states; nobody knows for sure exactly how many. But before long, this country will have several million patients with Alzheimer's dementia. The challenges and costs of maintaining vegetative state patients will pale in comparison to the problems presented by Alzheimer's disease.

Since women now live much longer than men, and since Alzheimer's is a disease of the elderly, most of these patients will be female. Many will spend their last years largely unaware of themselves or their surroundings.

If people really understood the reality of this dementia, I doubt they'd find it an acceptable lifestyle. Being in a state of wakeful oblivion for five to 10 years or sometimes longer is a degrading experience. The degradation is borne not so much by the patient, who may be completely unaware of him- or herself, but by the patient's family. They must endure the agony of seeing a loved one lying there year after year, often sustained only by a feeding tube.

Just as we've tried to come to grips with appropriate care of PVS patients, we've got to confront the dilemma of dealing with the demented. Comfortable solutions aren't easy to find.

So much in medicine today is driving the public towards physician-assisted suicide. Many onlookers are dismayed by doctors' fear of giving families responsibility in these cases; our failure to appreciate that families suffer a great deal too in making decisions; our archaic responses to pain and suffering; our failure to accept death as a reality and an inevitable outcome of life; our inability to be realistic and humane in treating irreversibly ill people. All of this has shaken the public's confidence in the medical profession.

People fear becoming prisoners of medical technology, and their fears are largely justified. When medicine and society refuse to face up to tough questions of treatment and honor individual values, physician-assisted suicide and active euthanasia start to look like the only open exits.

Consider, for example, the case of Jamie Butcher -- a young Minnesota man of 34 who spent half his life in a vegetative state. After tending his inert body for 17 years, his parents finally made the heartbreaking choice to let him die. You couldn't find two more loving, caring, intelligent parents than Jim and Pattie Butcher. Their decision to remove Jamie's feeding tube should have been relatively simple -- and entirely private. But right-to-lifers and some disability groups fought the Butcher family every step of the way, assailing their legitimate choice to withhold futile treatment as an act of euthanasia.

This is just the sort of inflammatory talk that threatens to drive society down the path towards physician-assisted suicide. Medical organizations, courts and other groups generally agree that there are some important distinctions between stopping treatment and acting to cause a patient's death. By insisting that withdrawing a feeding tube is akin to euthanasia, these special interest groups are undermining their credibility.

And they're creating unnecessary confusion for the growing numbers of families losing a loved one to Alzheimer's. Vegetative state cases are not nearly as numerous as cases of Alzheimer's. But both kinds of cases force families to mull over the same question: When the human brain is so badly damaged that its owner can no longer think or even eat, what should be done?

This is a question families should feel free to answer for themselves -- without fearing intrusion from outsiders. And when you really think about it, the idea of placing a feeding tube in a patient with advanced Alzheimer's disease makes no sense at all, medically or morally. It borders on barbaric and cruel. It's just the kind of dehumanizing medical intervention that the public finds so distasteful. It's the sort of practice that undermines confidence that doctors have the best interests of patients and families at heart.

In Europe, feeding tubes are rarely seen in nursing homes. Once a patient is so severely brain-damaged that only artificial nutrition can sustain life, many doctors and families rightly ask, "What's the point?" In many civilized countries, the question wouldn't be asked -- because placing a feeding tube in someone with end-stage dementia wouldn't even be considered.

But here in the United States, many caregivers wouldn't consider not placing a feeding tube in the same patients.

It's hard to understand why. If we want our loved ones to live and die in dignity, we ought to think twice before suspending them in the last stage of irreversible dementia. At it is, it seems that we're not thinking at all.

-- Ronald Cranford, of Bloomington, is a neurologist at Hennepin County Medical Center and a faculty associate at the University of Minnesota's Center for Biomedical Ethics


TOPICS: Culture/Society; Editorial; News/Current Events; Philosophy
KEYWORDS: schiavo; terri; terrischiavo
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1 posted on 10/20/2003 9:08:00 PM PDT by Chancellor Palpatine
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To: Chancellor Palpatine
I will fight for anyone's right to have a feeding tube withdrawn *if he or she has a painful, terminal condition* and clearly indicated that desire by living will.

Oh, this is about Terri? None of that applies. No one has the right to end her life without conviction by jury and her express wishes about final care (and her condition was not terminal in any case, until they decided to make it so.)

If she is indeed in a "vegetative condition" then the painful part doesn't even apply.

Goodnight and good find. Even if the word is getting out via the lying sneaking liberals who want active euthanasia legalized, at least people are going to hear about this and maybe some more people will seek out the actual facts.
2 posted on 10/20/2003 9:14:31 PM PDT by ChemistCat (Bought the cats a new scratching-couch. It looks great so far.)
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To: Chancellor Palpatine
More pro-death stuff. It's none of their business. If it were them, they'd change their minds in a hurry!
3 posted on 10/20/2003 9:14:47 PM PDT by concerned about politics ( Have you donated to the Salvation Army? Liberals HATE Christian organizations! Tax deductable, too)
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To: Chancellor Palpatine
These murdering ghouls would have considered me for "euthanasia" since I was "fed" intraveneously via a port in my chest for a year - not to mention the tracheotomy and breathing tubes - comatose for several weeks...

Did you know that while comatose a person DOES HEAR what is going on? Admitedly, the brain does some wierd interpretations of the external stimuli, and even while the body does not move, the brain sure as hell does!

I had a little "clarifying" to do with a couple of surgeons when I finally recovered enough to talk half way coherently....especially when I described what one did to me while I was on the operating table. He had an "unprofessional" method of removing a bandage.
4 posted on 10/20/2003 9:16:26 PM PDT by steplock (www.FOCUS.GOHOTSPRINGS.com)
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To: ChemistCat
Oh, this is about Terri? None of that applies. No one has the right to end her life without conviction by jury and her express wishes about final care (and her condition was not terminal in any case, until they decided to make it so.)

Her husband "said" she wanted to die. Of course, he may have tried to kill her and that's how she got there in the first place, but hey. Would he lie just to save his own skin?
Yep!

5 posted on 10/20/2003 9:18:25 PM PDT by concerned about politics ( Have you donated to the Salvation Army? Liberals HATE Christian organizations! Tax deductable, too)
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To: Chancellor Palpatine; NYer; Salvation; RnMomof7
Pro-euthanasia of elderly alzheimer patients is a huge step from not keeping a feeding tube in a comatose patient.

The issue with Terri Shiavo is not the removal of the tube. It is that no one would attempt to use therapy to teach her to eat on her own.

It is possible that behind the incapacity she has she might be aware of her surroundings. She would not be the first incapacitated patient for whom that is true.
6 posted on 10/20/2003 9:18:43 PM PDT by xzins (And now I will show you the most excellent way!)
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To: steplock
Can you be specific? What happened when you were "out of it" that you could actually recall when you got better?
7 posted on 10/20/2003 9:19:02 PM PDT by krb (the statement on the other side of this tagline is false)
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To: steplock
Did you know that while comatose a person DOES HEAR what is going on? Admitedly, the brain does some wierd interpretations of the external stimuli, and even while the body does not move, the brain sure as hell does!

So Teri hears every damning word her husband says?
Pray for rehabilitation. All she has to know how to do is push a "yes" button to convict him.

8 posted on 10/20/2003 9:21:16 PM PDT by concerned about politics ( Have you donated to the Salvation Army? Liberals HATE Christian organizations! Tax deductable, too)
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To: ChemistCat
When one argues in the general one can hardly be proven wrong.

The Terri Schiavo case is a specific case. There are facts and specific arguments involved in that case.

For example, if you were to ask should people be allowed to die in dignity you'd agree. If you argued should people who have a chance of recovery be allowed to die in dignity without trying or attempting to save them you'd probably be given a different answer.

That's why we have to focus on the specifics of this case and not general pro-euthanasia or anti-suicide arguments.
9 posted on 10/20/2003 9:21:34 PM PDT by Bogey78O (No! Don't throw me in the briar patch!!!!!)
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To: Chancellor Palpatine
If we want our loved ones to live and die in dignity, we ought to think twice before suspending them in the last stage of irreversible dementia.

Back when grandma and the kids had to decide to sell the farm or keep grampa alive, extreme life-suspending efforts after "the appointed time to die" was a rare exception.

10 posted on 10/20/2003 9:22:21 PM PDT by Nebullis
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To: concerned about politics
How do you know that outside of some hyperbole, considering that Terri's family got along well with him until he indicated that he wanted to move on with his life? I'm trying to figure out how somebody gets along so well for so long with an abusive monster, then has a sudden change of heart.
11 posted on 10/20/2003 9:22:59 PM PDT by Chancellor Palpatine
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To: MarMema
ping
12 posted on 10/20/2003 9:26:18 PM PDT by CindyDawg
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To: Nebullis
Funny thing, that ol' cost-benefit analysis.
13 posted on 10/20/2003 9:27:05 PM PDT by Chancellor Palpatine
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To: Chancellor Palpatine
How do you know that outside of some hyperbole, considering that Terri's family got along well with him until he indicated that he wanted to move on with his life?

I saw the parents interviewed on TV. He's beat her before.
He was Teri's husband. What could they do if she still stayed with him?
That's why they want the medical records exposed. She's SUPPOSE to be in her condition because of a heart attack, but she also had multiple broken bones and a wound to the neck.

14 posted on 10/20/2003 9:27:41 PM PDT by concerned about politics ( Have you donated to the Salvation Army? Liberals HATE Christian organizations! Tax deductable, too)
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To: Chancellor Palpatine; FormerLib; katnip
Ronald Cranford is a sick sick man and I can hardly believe you would post something he wrote.

He is not only a liar and a sadist but a killer.

You need to read some of the stuff he has written in medical journals, and the replies.

Anyway since when did you become such a utilitarianist?

15 posted on 10/20/2003 9:29:08 PM PDT by MarMema (KILLING ISN'T MEDICINE)
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To: All
I have placed this article not so much as a reflection of the Schiavo case, but more as a conversation piece for the education those who have stated on other threads their desire to have all possible efforts taken in the event something like this happens to them.
16 posted on 10/20/2003 9:29:52 PM PDT by Chancellor Palpatine
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To: xzins
You are correct. It is abuse of the disabled.
17 posted on 10/20/2003 9:30:29 PM PDT by MarMema (KILLING ISN'T MEDICINE)
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To: Chancellor Palpatine
I'll choose life. I'm not leaving until I have to.
18 posted on 10/20/2003 9:31:22 PM PDT by concerned about politics ( Have you donated to the Salvation Army? Liberals HATE Christian organizations! Tax deductable, too)
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To: MarMema
I can't say I know anything about the guy - I just googled up something on some aspects of feeding tubes.

And to clarify - I also don't agree with some of his euthanasia and alzheimer's mixing - but some of what he says does make sense.

19 posted on 10/20/2003 9:31:45 PM PDT by Chancellor Palpatine
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To: hocndoc
ping
20 posted on 10/20/2003 9:31:50 PM PDT by MarMema (KILLING ISN'T MEDICINE)
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