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"Chat" CONSERVATIVE PARENTS (AND CONCERNED PARTIES)OF PARENTS OF "AT RISK" CHILDREN
05/22/2003 | cherry_bomb88

Posted on 05/22/2003 6:52:44 AM PDT by cherry_bomb88

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To: ChemistCat
I will keep you in my prayers!! Please keep me posted, FReep mail if necessary. I hope & pray everything comes out ok and you can get some rest soon.
81 posted on 05/26/2003 8:23:36 PM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: All
Tourette's Syndrome & ADD/ADHD & OCD "Holistic" treatment information
82 posted on 05/26/2003 8:26:14 PM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: cherry_bomb88
Wow Great Find! Thanks for the ping.
I sent it out to my mailing list addys.
83 posted on 05/26/2003 9:22:34 PM PDT by oceanperch (Hipublicans live here.)
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To: codercpc
Hah. My son has severe quad CP too and was never expected to live after comining home from the hosp after birth.

He is 24yrs as of Friday. The docs all shake there head as he is one of the oldest living as severe as he is.

He told the doc on his last visit (he speaks through augmentive device) that he is going to live to be 100.

I turned to the doc and said damn that means I have to live to 119.

Don't get me wrong everyday is a tough on some not so intense. But the will to live and me respecting and supporting him despite what society says has us here today.
84 posted on 05/26/2003 9:32:51 PM PDT by oceanperch (Hipublicans live here.)
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To: ChemistCat
Being manic helped me raise my severe Cerebral Palsy son.

As I have aged I found a med. that works great.

He also developed manic on top of his Cerebral Palsy and doc prescribed him what I take working great.

It is a B*8ch being a getting older and having to take care of me so I can care for him.

I hear you on getting to the doc. I have not seen a dentist for 13years. Thank God I have not had any dental problems.

My son is so severe he has to have his teeth cleaned under anesthesia and has never had a dental problem other than his wisdom teeth taken out.

Thank God for little miracles.

On another note now that he is not a peds. patient it was hard to find hosp. that would even treat him. Yes he has been declined due to his severity.
85 posted on 05/26/2003 9:52:33 PM PDT by oceanperch (Hipublicans live here.)
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To: oceanperch; All
Just FYI for manic symptoms we are using Serequel.

Doc says he uses it for his gereatric patients for sleep also.

We have different family doctors so they can be objective to our individual needs. But they do compare notes with our blessing.

And they thanked me for not over taxing one with both of us. lol
86 posted on 05/26/2003 10:01:16 PM PDT by oceanperch (Hipublicans live here.)
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To: Risa
In my speech in language group for kids with apraxia of speech, there are many parents that have had excellent results from fish oil. Their kids started talking more.

I put my daughter on a generic fish oil last year, and noticed some improvements.

We tried a new fish oil this year, ProEFA. My daughter with apraxia didn't make any noticeable improvements. We think my other daughter's temper tantrums may have gotten worse on the ProEFA, so we have stopped it.

We'll go back to the generic fish oil for the daughter with tantrums.

We also think the fish oil has helped my son with a tic disorder.

Anyway, we don't eat much fish, and I don't think it really hurts, so we'll take it. Manic depression and depression run in our family, and I have read a lot of links about the fish oil, and depression.
87 posted on 05/27/2003 7:57:04 AM PDT by luckystarmom
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To: cherry_bomb88
You can buy a fish oil over the counter, but look at the ingredients. There's on called ProEFA that is very popular and also contains either evening primrose or borage oil.

Here's some links:

https://www.nordicnaturals.com/direct/prodsummary.asp?ID=28

This link has lots of research sites on it. It's very interesting.

http://www.nordicnaturals.com/direct/research.asp
88 posted on 05/27/2003 8:03:20 AM PDT by luckystarmom
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To: cherry_bomb88
Thanks for the link. My son has a tic disorder. It is not bad right now, so we are looking at alternative treatments.

89 posted on 05/27/2003 8:18:29 AM PDT by luckystarmom
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To: luckystarmom
You're very welcome...that's what this thread is here for.
90 posted on 05/27/2003 10:27:41 AM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: luckystarmom; sultan88
Thanks, lucky! I've bookmarked them to look at later!

Big '88...how about that, my own thread and I can't even snag the "88" post!!! LOL

91 posted on 05/27/2003 10:28:55 AM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: luckystarmom; Johnny Gage; annyokie; Corin Stormhands; Piltdown_Woman; not-an-ostrich; Risa; ...
IN CASE ANYONE IS INTERESTED .....

_________________________________________________________________

NAMI E-News May 20, 2003 Vol. 03-26

__________________________________________________________________

Don't Miss the 2003 NAMI Convention!
Partnerships for Recovery:
Confronting the Mental Health Crisis in our Communities
June 28 - July 1, 2003
Minneapolis, MN

Don't miss your opportunity to register for NAMI's 2003 Annual Convention at the Early Bird rate! The deadline to register at this discounted rate is May 31, 2003.

Confronting - and successfully resolving - the mental health crisis in our communities requires that NAMI members forge innovative partnerships with other committed activists both within and outside of the mental health arena. These working partnerships must then be powered by the latest information, the most effective strategies, and the most up-to-date tactics.

We invite you to join us in Minneapolis next summer as we identify our partners, collaborate on tactics and strategies, and move the process of confronting the mental health crisis forward.

It's a wonderful opportunity to learn about new research, services and treatment that will benefit you and your family members.

In addition to the program tracks, a vital component of the program are the research sessions. NAMI is working with leading researchers and clinicians to bring you research updates in five critical areas:

* Treatment of Cognitive Deficits in Schizophrenia
* Brain Imaging: Fulfilling the Promise
* Early Intervention for Psychotic Disorders
* New Research on Borderline Personality Disorder
* New Research In Bipolar Disorder

Among the confirmed speakers for these cutting-edge presentations are Thomas Insel, MD, Director of NIMH; Charles Schulz, MD, University of Minnesota; Michael Green, PhD, UCLA; Richard Keefe, PhD, Duke University; Nancy Andreasen, MD, University of Iowa; Barbara Cornblatt, MD, Hillside Hospital; Thomas McGlashan, MD, Yale; Mary Zanarini, EdD, McLean Hospital; Emil Coccaro, MD, University of Chicago; Peter Weiden, MD, SUNY Brooklyn; Robert Findling,MD, Case Western Reserve University; William Lawson, MD, Howard University; Carol Tamminga, MD, University of Texas; Husseini Manji, MD, NIMH; Shirley Marks, MD, Black Psychiatrists Association.

Many more of the nation's leading scientists will be appearing in these sessions and in the ever-popular ASK-THE-DOCTOR sessions.

Last Chance for Early Bird Rates!

Join us in Minneapolis, MN with clinicians, researchers, and NAMI grassroots experts from all over the country. For additional information regarding NAMI's 2003 convention--including an outline of the program, confirmed speakers, and hotel and travel information--and to register on-line, visit the convention section of the NAMI Web site at

http://www.nami.org/convention03/minneapolis.html.

My personal disclaimer....I receive the NAMI newsletter. I read everything with a grain of salt. There is some good information, some great ideas and some great doctors...HOWEVER...they can tend to lean to the left some times....so as you read, remember to put the information through your "liberal BS" filter. :o)

92 posted on 05/27/2003 11:50:55 AM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: cherry_bomb88
Thanks for the pings. But I'm really not interested in following this issue on FR. Would you please remove me from your list?

Thanks.
93 posted on 05/27/2003 11:53:46 AM PDT by Corin Stormhands (http://wardsmythe.crimsonblog.com)
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To: Corin Stormhands
done
94 posted on 05/27/2003 12:01:08 PM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: cherry_bomb88
Hello...I just got back from a long week-end holiday, and I have some catching up to do here. I am so impressed and enthused, too, with the number of high-quality brain health resources people have posted, as well as the valuable personal input from posters who must deal with brain health issues every day.

What a tremendous idea, it is, Cherry_bomb88, to have initiated a forum for conservative people on this topic. I am grateful to you for your idea and for making it happen.

Best,
risa



95 posted on 05/28/2003 6:26:46 AM PDT by Risa
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To: Risa; All
Thanks...but it's only successful because of everyone in here. And it is rather selfish....I get as much(if not more)from everyone else as they get from me. :o)

Sorry I haven't posted any research stuff or quips today, folks. I had a LOOOOOOOOONG day and a brutal headache. But I'll get back on it tomorrow.

96 posted on 05/28/2003 4:10:26 PM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: luckystarmom; Johnny Gage; annyokie; Piltdown_Woman; not-an-ostrich; Risa; Radix; ChemistCat; ...
TWO TISSUE WARNING!!! The following story is worth the long read and super sweet! It came in my email today and thought it was perfect for today's post!

A Trucker's Story

I try not to be biased, but I had my doubts about hiring Stevie. His placement counselor assured me that he would be a good, reliable busboy. But I had never had a mentally handicapped employee and wasn't sure I wanted one.

I wasn't sure how my Customers would react to Stevie. He was short, a little dumpy with the smooth facial features and thick-tongued speech of Down Syndrome.

I wasn't worried about most of my trucker customers because truckers don't generally care who buses tables as long as the meatloaf platter is good and the pies are homemade. The four-wheeler drivers were the ones who concerned me; the mouthy college kids traveling to school; the yuppie snobs who secretly polish their! silverware with their napkins for fear of catching some dreaded "truck stop germ"; the pairs of white shirted business men on expense accounts who think every truck stop waitress wants to be flirted with.

I knew those people would be uncomfortable around Stevie so I closely watched him for the first few weeks. I shouldn't have worried. After the first week, Stevie had my staff wrapped around his stubby little finger, and within a month my truck regulars had adopted him as their official truck stop mascot. After that, I really didn't care what the rest of the customers thought of him.

He was like a 21-year-old in blue jeans and Nikes, eager to laugh and eager to please, but fierce in his attention to his duties. Every salt and pepper shaker was exactly in its place, not a bread crumb or coffee spill was visible when Stevie got done with the table. Our only problem was persuading him to wait to clean a table until after the customers were finished.

He would hover in the background, shifting his weight from one foot to the other,scanning the dining room until a table was empty. Then he would scurry to the empty table and carefully bus dishes and glasses onto cart and meticulously wipe the table up with a practiced flourish of his rag. If he thought a customer was watching, his brow would pucker with added concentration. He took pride in doing his job exactly right, and you had to love how hard he tried to please each and every person he met.

Over time, we learned that he lived with his mother, a widow who was disabled after repeated! surgeries for cancer. They lived on their Social Security benefits in public housing two miles from the truck stop. Their Social worker, who stopped to check on him every so often, admitted they had fallen between the cracks. Money was tight, and what I paid him was probably the difference between them being able to live together and Stevie being sent to a group home.

That's why the restaurant was a gloomy place that morning last August, the first morning in three years that Stevie missed work.

He was at the Mayo Clinic in Rochester getting a new valve or something put in his heart. His social worker said that people with Down Syndrome often had heart problems at an early age so this wasn't unexpected, and there was a good chance he would come through the surgery in good shape and be back at work in a few months.

A ripple of excitement ran through the staff later that morning when word came that he was out of surgery, in recovery and doing fine. Frannie, head waitress, let out a war hoop and did a little dance in the aisle when she heard the good news. Belle Ringer, one of our regular trucker customers, stared at the sight of the 50-year-old grandmother of four doing a victory shimmy beside his table.

Frannie blushed, smoothed her apron and shot Belle Ringer a withering look.

He grinned. "OK, Frannie, what was that all about?" he asked.

"We just got word that Stevie is out of surgery and going to be okay."

"I was wondering where he was. I had a new joke to tell him. What was the surgery about?"

Frannie quickly told Belle Ringer and the other two drivers sitting at his booth about Stevie's surgery, then sighed. "Yeah, I'm glad he is going to be OK" she said. "But I don't know how he and his Mom are going to handle all the bills. From what I hear, they're barely getting by as it is."

Belle Ringer nodded thoughtfully, and Frannie hurried off to wait on the rest of her tables. Since I hadn't had time to round up a busboy to replace Stevie and really didn't want to replace him, the girls were busing their own tables that day until we decided what to do.

After the morning rush, Frannie walked into my office. She had a couple of paper napkins in her hand a funny look on her face.

" What's up?" I asked.

"I didn't get that table where Belle Ringer and his friends were sitting cleared off after they left, and Pony Pete and Tony Tipper were sitting there when I got back to clean it off," she said. "This was folded and tucked under a coffee cup."

She handed the napkin to me, and three$20 bills fell onto my desk when I opened it. On the outside, in big, bold letters, was printed "Something For Stevie."

"Pony Pete asked me what that was all about," she said, "so I told about Stevie and his Mom and everything, and Pete looked at Tony and Tony looked at Pete, and they ended up giving! Me this."

She handed me another paper napkin that had "Something For Stevie" scrawled on its outside. Two $50 bills were tucked within its folds. Frannie looked at me with wet, shiny eyes, shook her head and said simply "truckers."

That was three months ago. Today is Thanksgiving, the first day Stevie is supposed to be back to work. His placement worker said he's been counting the days until the doctor said he could work, and it didn't matter at all that it was a holiday. He called 10 times in the past week, making sure we knew he was coming, fearful that we had forgotten him or that his job was in jeopardy.

I arranged to have his mother bring him to work, met them in the parking lot and invited them both to celebrate his day back.

Stevie was thinner and paler, but couldn't stop grinning as he pushed through the doors and headed for the back room where his apron and busing cart were waiting.

"Hold up there, Stevie, not so fast," I said. I took him and his mother by their arms. "Work can wait for a minute. To celebrate you coming back, breakfast for you and your mother is on me!" I led them toward a large corner booth at the rear of the room.

I could feel and hear the rest of the staff following behind as we marched through the dining room.

Glancing over my shoulder, I saw booth after booth of grinning truckers empty and join the procession. We stopped in front of the big table.

Its surface was covered with coffee cups, saucers and dinner plates, all sitting slightly crooked on dozens of folded paper napkins.

"First thing you have to do, Stevie, is clean up this mess," I said. I tried to sound stern.

Stevie looked at me, and then at his mother, then pulled out one of the napkins. It had "Something for Stevie" printed on the outside. As he picked it up, two $10 bills fell onto the table.

Stevie stared at the money, then at all the napkins peeking from beneath the tableware, each with his name printed or scrawled on it.

I turned to his mother. "There's more than $10,000 in cash and checks on that table, all from truckers and trucking companies that heard about your problems.

"Happy Thanksgiving,"

Well, it got real noisy about that time, with everybody hollering and shouting, and there were a few tears, as well. But you know what's funny?

While everybody else was busy shaking hands and hugging each other, Stevie, with a big, big smile on his face, was busy clearing all the cups and dishes from the table. Best worker I ever hired.

97 posted on 05/28/2003 5:10:55 PM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: cherry_bomb88
What a sweet story! Apocriphal(sp)or not. Down's Syndrome people are some of the best workers around. They sacked groceries at my supermarket in Pittsburgh and always made sure the eggs and bread were on the top.

98 posted on 05/28/2003 7:30:50 PM PDT by annyokie (provacative yet educational reading alert)
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To: annyokie
One of my closest friend's niece is down's syndrome...I spent the weekend with her last weekend...she's a sweetheart and so innocent...they are unaffected by the stress we say day to day.
99 posted on 05/28/2003 9:10:32 PM PDT by cherry_bomb88 (I'm normal....it's the rest of the world that's crazy!)
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To: cherry_bomb88
A friend of mine from high school has a Down's Syndrome brother. He is such a sweet boy.
100 posted on 05/28/2003 9:14:12 PM PDT by annyokie (provacative yet educational reading alert)
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