I feel for you both and admire your strength and commitment. Been there. But don’t forget to take care of yourself too, it is easy to forget. And don’t feel guilty if you have someone spell you once in awhile so you can have a couple hours off now and then. It greatly helped me keep my own sanity so I could could continue to be devoted.
Yup- we had to do that when taking care of alzheimers patient- it’s so overwhelming and physically drain9ng that we had to have someone come in once in awhile and give us a few hours relief. The professional caretakers get to go home after 8 hour shift, but when the patient lives at home, there are no breaks as the patient can be up and moving around at all hours
Note to folks taking care of alzheimers patients- I stall locks up high on doors in addition to the regular lock by handle. The patient may be able to undo the handle lock because theyve done that their whole lives, but won’t realize that there is another lock. It is for their own safety and your peace of mind as you try to sleep.