that woudl be a huge breakthrough- I’ve known 4 people personally that have died from ALS- such a heartbreaking way to go- especially when they are younger, which the 4 i knew were- 40’s was the oldest-
as most know, Steve Hawking had it- it was incredible though how long he lived with it- but what a way to live- wasnt easy for sure-
I wish they were doing much more with ALS research.
My family has the familial ALS gene - and we’ve lost 17 (possibly more we don’t know about) family members from ALS.
Closest to me have been my grandfather and two of his brothers, as well as several aunts and uncles, and cousins of mine.
There could be others we don’t know about over the generations. My grandfather’s generation seems to be the first one to have it show up, but his great grandmother died in 1860 at age 30 of “paralysis”. I always wondered if it was ALS that nobody knew about then.