As I posted to gas_dr, it is things like this which will drive us to have separate, parallel medical systems. And perhaps if the medical establishment and Pharma try to stop us, there will be trouble for them. There is simply no excuse for not hiring the wish of the parents in this instance. At present, I would simply arrange it in another country and fly there without telling the asshole MD and hospital.
Doctors seem to forget who they work for.
The patient is hiring them to do a job, not to control their lives. We are not selling ourselves into indentured servitude or volunteering to be a human lab rat, by seeing a doctor for a problem we are experiencing.
We expect them to address and fix the problem, not experiment on us with or without our knowledge or permission.
That is absolutely fine. I have zero argument with that