Posted on 07/31/2022 11:58:20 AM PDT by BenLurkin
there is someone here that has a professional tennis player as a relative. he got Covid. it really messed with his career. not sure if he can now play .
They tried to dump me in the fibromyalgia category and said I could try Lyrica. I said I am not accepting that..it’s a catchall when you can’t figure it out. I am not taking Lyrica if it is really something else...and as it turns out..it was really something else.
I am hacked off at what I have been through but apparently it is pretty common with people dealing with autoimmune issues
I’m skeptical of “long Covid”. Seems like a catch-all version of so-called fibromyalgia…
Right.
I’m currently writing an ebook on long covid.
My research shows that people with any kind of autoimmune or or otherwise chronic disease or diabetes prediabetes or are otherwise have high bmi—also have very low glutathione. They also have low NAD+.
To increase glutathione you take glycine and NAC. To increase NAD+ you take high dose NMN NR and/or EXTENDED Release Niacin. (You have to look for the specific words Extended Release Niacin.) That gives the niacin without the flush.
I think you’ve made a good connection there. Long Covid. Fibromyalgia. Attention. No work.
So do I. Regarding Long-Covid, it’s obviously a thing, and like anything else, some people are going to exaggerate and try to take advantage — but it’s real enough.
I’m just glad my wife and daughter put their dainty feet down and refused to allow me to get the vax. I’m no scientist, but just looking around, I can see that most of the people who are getting sick with repeat cases are vaxed and don’t seem to be any better off, so why take the chance?
Apparently long Covid doesn’t result in loss of appetite.
I had my glutathione tested. I expected it to be low. It was normal. Haven’t had my NAD tested.
I suspect a significant amount of long Covid people had something percolating and then COVID jump started the issue. Or a genetic factor that got the switch turned.
As an example:
You could be Anti Jo positive and not know it. Maybe it really hasnt started to do anything to you yet. You get COVID. Now you have Myositis and ILD. You think it is Long Covid because no one has bothered to check to see if you are Anti Jo positive
Also, for anyone experience weird stuff try COQ10. For whatever reason it helps some people with rheumatology type problems
I am trying 40 blueberries a day because a few people have said it has helped them for psoriasis. It probably wont do jack for me but still trying it. I am one of the lucky ones. I just have psoriasis in one spot
“Now long COVID has left her with profound brain fog, fatigue, light-headedness ...”
It’s convenient than NONE of those things can be medically diagnosed.
And the other symptoms ... what are they? Are they able to be diagnosed?
It really isn’t “convenient”. I have bouts of all three of those things. Had one this morning and I had to go back to bed. I haven’t had COVID
I am going to do a restrictive diet to see if something could be an issue that just isnt showing up on allergy tests. Like silent Celiac disease because I have the HLA-DQ 8 gene.
I encourage people to spend the money and get genetic testing if you are in diagnosis hell. It helped me target testing to get. You can get brain fog from Sjogren’s. You can also get it from Celiac Disease. If you have tested negative for Sjogren’s there is an early Sjogren’s test at Quest.
Unfortunately, people are at the mercy of the Doctors to lead them to the right testing. You have to take control of your medical situation.
“I myself got covid sans vaccination. I was down and out about 2 weeks and ironically have been feeling better then I have in a long time after recovering.”
Same here. September 2021. About two weeks start to finish. Feel better now than I have in years. I attribute it to the Ivermectin I took.
Who knows what crud some (many) of us have inside us causing unexplained feelings of punkiness...
A FReeper farmer once posted that she takes two regimens of Ivermectin a year just to be on the safe side. Not a bad idea.
“You have to take control of your medical situation.”
That is so true. Gone are the days when your physician had his patients’ best interests as a priority.
In figuring out what restrictive diet I am going to go on I looked at Whole 30 and what people had to say about it. After your body goes through the shock of not having sugar, grains, or dairy it seems a lot of people feel better.
They may not have any kind of official disease that makes them feel that way. It’s interesting. Perhaps some people could get by with just doing no high fructose corn syrup and feel better.
Certainly, if I thought I had long haul Covid I might try a restrictive diet to see if it helped.
I am going to ease into the restrictive diet so as not to put my body into shock. Plus my Diet Coke is the last thing I want to give up for 30 days..even though I know it is bad for you.
It’s real.
I’m living it.
It’s interesting to see what happens on certain diets. I’ve never paid much attention in my life — just ate what I wanted and was comfortable being consistently about 25 pounds more than I should be.
When a blood test showed my blood sugar was a little high I paid more attention to what I was eating.
No bananas (lotsa sugar) at all instead of one a day. One diet Coke a week instead of one a day (the body “reads” artificial sweetener as sugar).
Bread, pasta, potatoes, rice were cut by about 75—80%. I love carbs, so that hurt at first. I never was one for actual sweets.
My next blood test 6 months later showed a lower number, although I expected much lower. But I had lost 15 pounds. I knew my clothes fit better but never weighed myself at home. Haven’t stood on a bathroom scale in decades — LOL!
I guess I’ll stick with this, but maybe not as drastic, for a while longer. Overall, I feel pretty darn good and am lucky, I guess. I realize chronic pain can rear its head at any time.
My brother, non-vaxxed, caught Covid January 2021, one night in hospital with low blood oxygen, recovered in about two weeks. Prior to infection he had chronic pain with Psoriatic Arthritis, post infection he had little to none problems with the arthritis. A year and a half later the arthritis is beginning to return; he jokingly says it’s time to go another round with the Covid because the time without the arthritis was worth it. He didn’t take any ivermectin. There’s my anecdote.
Do you remember what meds they gave him that might have had an effect on the psoriatic arthritis. Interesting story.
“Long Covid”
aka
“I had 2 experimental mRNA spike-protein jabs and 2 boosters, and thank goodness, or my Long Covid might have been even worse!”
She can’t work, but boy can she communicate with the CDC or anybody else who will listen. Not buying it for a second.
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