Check out N3C.
https://covid.cd2h.org/
Database of 7.9M patients with and without COVID-19 (running on Palantir).
First step: don’t let your data get in their datasets.
Second step: realize that you don’t have any privacy, the only things that can be kept private are those that are scrupulously kept separate from yourself.
Note “scrupulously kept separate” is difficult to impossible to achieve.
“Even though the data set had no identifying information, the newsletter found him using his DEVICE ID AND LOCATION DATA.”
THIS is a huge problem... And they need to quit requiring it in order to participate. And using hidden 3rd party APIs that collect it without your knowledge.
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