I would think that this treatment could be tried much sooner under the right to try law that Trump got enacted.
announced as Labor Day used to have Jerry Lewis MDA telethon and we would learn news then?
how much does Muscular distrophy cost america?
The total national cost for the three disease combined was conservatively estimated to be somewhere between $1.07 and $1.17 billion per year. The breakdown of which was $362 to $488 million for DMD, $448 million for MMD, and $256 to $433 million for ALS.Jun 5, 2017
https://goo.gl/4SaeuP
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a cure for alzheimer’s disease would be a boon to the economy.
The estimated cost of caring for Americans with Alzheimer’s and other dementias is $277 billion this year — and that doesn’t include unpaid caregiving. Of that amount, $186 billion is the cost to Medicare and Medicaid, and $60 billion is for out-of-pocket costs, the report found.Mar 20, 2018
I am so hoping this turns out. Hubs, his dad, cousins and multiple aunts and uncles have an autosomal-dominant form of MD, limb-girdle type ... it affects muscles in the legs, hips and shoulders.
Because of the cost and pain of muscle biopsy none of our kids have been tested yet. We’re hoping for improved, less invasive testing. There’s a chance all of them have it.
Glad to see this story.
Wonderful news - I had a dear friend pass away when we were both 12 years old from this disease. So sad.
Exciting advance. My wife has a genetic mutation that significantly increases cancer risk. One day we’ll have our kids tested, but I hope and believe that by the time they need to face this challenge, similar genetic editing will be available to correct the defect they may carry. If we’re lucky - even sooner to correct my wife’s genes...