You might wish to send a letter to the Chief of Pediatric Gastroenterology at Johns Hopkins Hospital. She’s arguably the best in the country based on her position and hospital.
If she calls it Crohn’s (she does) that’s good enough for me.
I'm a pathologist and find myself doing the same at times. I'm just pointing out that technically it's improper terminology. If you're so inclined check the WHO manuals on disease classification which use the proper form. Say what you will about the UN these are the gold standard on the subject.