I have my suspicions in part because of the behavior exhibited by all parties (it looks like a situation in which a scamming quack tried to profit off a family tragedy) and because of my interest in research integrity and ethics. What Charlie’s parents were trying to do in this case is so far from my experience with reviewing research protocols, sitting in on ethics discussions, conducting and overseeing research etc., that I frankly find it shocking.
so be it. the doctor appears to be well respected in medical community http://columbianeurology.org/profile/mhirano -
one of America’s best, i read somewhere - who is devoting his life to experimentation. i hope he has success with others as he did with Art Estopinan (sp?). toodles.