i saw that - but i was asking for/i was looking for transcript of Dr H’s testimony to which he refers in which he speaks of having disclosed that he relinquished financial interest in his own therapy. since he never saw important Charlie data until way late i don’t think anyone disagrees that the clock had run out. but i don’t think it’s fair to impugn his reputation by suggesting he was taking financial advantage unless you have evidence. also i was bothered that the hospital never shared the last scan with the parents before springing it on them in court which was very upsetting. the whole thing is sad.
According to the court summary, the full transcripts will be released at a later date. They have to be anonymized prior to release.
Even without direct sworn testimony from Hirano, I would suspect a financial motive because of the sum Charlie’s parents raised through GoFundMe, that Hirano stood to gain if they would have carried through with their plan to come to the US for “treatment.” One and a half million dollars is a LOT to a researcher, who typically is scrambling for funding.
Hirano’s public claims that he is not motivated by money sound very self-serving to me. In the UK, people have attributed his motives entirely to greed, and in fact are saying that the US is an amoral country because a doctor will treat anyone with anything as long as they get the money. Clearly, they do not know anything of American regulations regarding patient care and research on human subjects. Dr. Hirano is *not* representative of American doctors, either MDs or PhDs—most of us, although always scrambling for money, would never subject a patient to an untested chemical mixture, regardless of how it behaved in early drug development. In the US, a few people (like me) are also questioning Hirano’s motives, and I think more people will question them as the emotional firestorm dies down.