Here’s one for you. About 15 years ago, I developed a bad reaction to all (so far) antibiotics. Started with Amox, but everything I have tried since has caused the same reaction.
About 3-4 days after I begin to take it, the skin on my hands starts to blister & peel. The skin around my nails hardens to the point that it causes my nail beds to buckle..it take months to grow the deep “lines” out. It’s like I’ve been poisoned. I have told this (and shown this) to every Doctor I have seen, and they are bewildered.
The last time (about 2 years ago) it was much worse. Blisters and skin shedding on the bottom of my feet & in my mouth/throat. I went to the Emergency Room (because it was on a Sunday), where a physician’s assistant...using a book...I kid you not, decided that it was nothing to worry about. She sent me home.
On Monday, my regular Doc gave me steroids to stop the worsening reaction. Also said that I should have an epi-pen on hand when (in the future) we would try the newer classes of antibiotics to see if those would work.
When I went to the pharmacist to get the steroids, I showed her my hands and told her what had been going on...she said “looks like Stevens-Johnson Syndrome...that’s not good.”
She’s the only one that has seemed concerned. No idea what to do about that except to not take antibiotics...I’m doing everything I can to avoid them.
Figure it will eventually kill me if I have to have IV antibiotics for some reason. I’ll end up as a “case” on one of those rare diseases TV shows....lol.
What kind of specialists have you seen? Dermatologist, allergist, immunologist?
If you don’t already, it would be a good idea to wear a medical alert bracelet (in the event that you had an accident and was being treated while unconscious).