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To: trussell

“they want me to get some tests done before the next step to make sure the hip pain isn’t something other than from the nerves.”

Just curious, but have they checked your blood inflammation levels for an autoimmune problem, such as RA? Or maybe it’s bursitis? More than likely they’ve already considered these things.

Another thought that comes to mind would be compensatory pain, which may resolve itself once other issues are taken care of.


328 posted on 12/22/2013 5:31:39 AM PST by Heart of Georgia
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To: All; Heart of Georgia; GailA
Just curious, but have they checked your blood inflammation levels for an autoimmune problem, such as RA? Or maybe it’s bursitis? More than likely they’ve already considered these things.

Not that I am aware of yet, but I have that on my list of questions to ask. I have been praying hard that God show me what he wants me to do about these devices/trials. I am fairly certain he is telling me this device isn't right for me. I am having discomfort in my stomach when I eat, I feel bloated and the pain gets so bad, I feel like I may get sick. There is too much buzz in my tummy, very little in my back, none in my right hip and good coverage in my legs. Thing is, my legs aren't one of the biggest trouble spots, they hurt when I lay on my side, but my biggest pain areas are my right hip and low back. I'm going to ask tomorrow if they can mess with the controls a bit and try to get coverage in those 2 areas and get the buzz out of my tummy...If so, I will give a little bit of consideration to trying the permanent one, with the idea that I can get it out immediately if I feel at any time that it isn't doing what is needed. If they can't get those areas covered, I will say "NO, it's not right for me". I tend to believe they will not be able to get the tummy/back issue worked out...not sure why, but if they had been able to, they should have done so on Thursday. More prayers for clear directions would be totally appreciated.

Prayers also for the kids; Kidlett CLR is still under the bridge in Savannah. She has the money that was sent to her saved and is holding it for when they find an apartment that they can afford. They are hoping that one will be open on the first of January. She hasn't been feeling well and that makes me worried about her. Kidlett CZR is having an increase of joint pain and headaches. He has been put on a different medicine for the pain, but I'm not sure it's the right one for his condition...he sees the Pediatric Rheumatologist on February 18th, but until then...he is just hurting. He has to help me so much now that I am in the chair, and especially with me in the trial of this device. Poor kid, he's amazing...and so willing to help me...but it's lots of work on him, and I feel bad having to rely on my son!

Christmas is coming up...we managed to get a cake for Jesus birthday. The rest will just be celebrated with CZR and me together, along with our landlord...and CLR in Savannah with her friend. Thanks again for the prayers...

329 posted on 12/22/2013 5:23:45 PM PST by trussell (I carry because...When seconds count between life and death, the police are only minutes away)
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