There is a family in our town who have 3 sons dealing with this strange syndrome. I’m going to forward this thread to a friend of mine who is a nurse and friend of this family. From what she has been telling us this is one heartbreaking malady.
We are in the Boston area.
My MD has great success with treating PANDAS with Low dose Naltrexone (LDN). This is an old out of patent cheap drug that modulates the immune system.
This child also has been diagnosed with Lyme, and I suspect that is a factor in this situation.
www.ldnscience.org