Has your husband been tested for Lead Poisoning? Or for B vitamin deficiencies?
I have it, too. Some days it is worse than others. My neck is fused from c-3 thru c-7, and my surgeon thinks there is a relationship between my severe whiplash and the PN.
Put a bar of Ivory soap (other soaps can be used, but Ivory soap seems to work) in between your husband's ankles.
Then good-night, sleep tight.
I see people are commenting about restless leg syndrome. Tons of articles about RLS being a symptom of tick illness. Tick illnesses are spreading rapidly, and medical community is not keeping up. There are more cases of tick illnesses( lyme, bartonella, etc.) than AIDS cases and for some reason no one is talking about this.
http://www.wellsphere.com/lyme-disease-article/restless-leg-syndrome-as-a-marker-for-unsuspected-chronic-lyme-disease/348430
I have it. A neurologist told me there are three things that can cause.
1) Diabetes
2) Alcoholism
3) They have no idea
The restless legs at night can be taken care of with a sleeping pill. I’ve been told that Niacin can help. However, one of the side effects of Niacin is blood sugar spikes. My advice is this: He’s going to have to learn to live with it. There’s really nothing that can be done to fix it. Thankfully, he and I both got it in our later years.
It is important to avoid injury to feet or legs, especially if poor circulation is implicated. I have seen a number of people with PN from various causes, and as far as I know it is not reversible, but progression may be quite slow. Initially it may be a mere minor nuisance, and let's hope it stays that way. Good luck.
stop eating anything with chemical in it- homemade soups and stews ans chili’s only
nothign canned
lots of bananas and NO FLOUR (gluten free diet)
helped me A LOT with twitches and stuff like that
exercize with very lights weights adding only 1 pound per week
Prayers for your husband.
Try thiamine it is good nerve vitamin certainly won’t hurt as it is watersouble
I can’t give any straight up medical advice but my grandfather has been dealing with this for several years (He’ll be 100 in Feb) and although it’s slowed him down it seems to have effected neither his piss nor his vinegar!
Basically he’s become significantly less steady on his feet but this change has been gradual.....over the past 7 years or so. We’ve coaxed him into using a cane but at this point he’d really be a lot better with a walker or a chair. My understanding is that nothing can really be done about it but his quality of life hasn’t suffered. For example, last spring he hired a band and conducted 2 sets for his birthday!
He should stay active but needs to be careful. No ladders. No stairs (as much as possible).
Good luck, and my prayers are with you.
I had similar symptoms and they couldn’t figure out the problem. Months later I self-diagnosed myself with Lyme disease and went back to the doctors. The test was positive. I’ve been treated for 9 months and am back to running, etc. Lyme disease mimics over 400 disease...including, MS, Parkinson’s, ALS, etc. And when you get tested, don’t use the normal hospital labs...they give false negatives many times...tell them to send it to iGeneX. If you have any questions, message me.
What I’m about to tell you sounds like alchemy, but I know it seemed to work for my dad, an M.D. who believed in and practiced alternative therapies. I lived with him for the last five and half years before he died at 97. Long story short, he got a machine that emits infra red light. It’s called Light Force Therapy: http://www.lightfortherapy.com/.
Had the same problem once. Even the feeling of worms crawling under my skin in the muscles. Turned out it was a bad disc in my back, Check with a Neurologist.
I am 70 YO, have had a 4X bypass 10 years ago, recent (2 years ago) knee replacement and last December I had 9 discs fused and 2-6” screws from the lower vertebra to the pelvis bones on both sides.
That said, I have had neuropathy for about 5 years. I also have RLS. (in spite of Rush's blather about it, I have it!) My Dr. says I am only borderline diabetic. I just checked my Blood Sugar and it came in at 90 (lowest in years).
In any event, as a result of the surgery I had to take Percocet and/or Vicoden. The Vicoden seems to have essentially killed the worst symptoms of the neuropathy. Just some tingling. No shooting pains as before. Also the RLS is GONE. Completely! YMMV and good luck but consult competent Doctors and get a second opinion.
Coconut oil! It could possibly even cure it.
Not on his feet; he has to eat it. Buy pure virgin organic coconut oil only. Health food stores will have it if your grocery store does not. Try to work up to 3 tbsp a day for him. You can cook your meat and veggies in it, but you should also try 1-2 tbsp in a smoothie for him (and you, it’s so healthy.).
Also, two things we are all deficient in, that will help as well. Have his vitamin d level checked with a blood test. If it’s under 50 add more d3 supplement until it’s 60. Get another test to make sure. Under 50 is deficient. Don’t listen to a doc who says it should only be 25. Research has changed that. Our bodies need more tp prevent and fight illnesses and conditions.
Magnesium is the other thing we are all deficient in. Try capsules of it, around 400-600 mg, and if he can take more, more. Too much will loosen the stools, if that happens, scale back slightly. Get some magnesium oil and bathe in it. If you can’t afford it use Epsom salts, but magnesium sulfate (Epsom salts) doesn’t last in the body as long. Topical magnesium will not loosen the bowels.
But for sure he should see great reduction in pain or a cure from coconut oil.
as I understand it, neuropathy affects millions so join the crowd...all is not lost....
I have neuropathy as a result of chemo. Mine ranges from what I call “zingers”... like someone just jabbed you with a long needle, to crushing sensations and heat.
I was also having serious hot flashes about a year after chemo, and the Dr put me on an antidepressant. He said it helped with the hot flashes. I noticed that my neuropathy improved significantly at the same time.... in fact, they seemed to be tied together. I would get a hot flash at the same time I got the crushing feeling in my feet.
After 6 months or so on the antidepressant I felt better enough to go off them. I still get zingers once or twice a day, and my feet feel hot all the time, but I no longer get the hot flashes or crushing. I have learned to just kick the covers off my feet at night.
We will pray mupcat,nice to see you.:)
Faith accompanied by the prayers of believing Christians
Second Opinion
Baclofen
Third Opinion
More Faith…
Treatment in her case initially was IVIG. However, her venous condition deteriorated over time because of the frequency of infusion, so her treatment was changed to twice a week chemo consisting of subcutaneous injections of Vivoglobin which is given at home. More recently the treatment product was changed to Hizentra. You can search both of these products on line for many more details.
Physicians conversant with this condition and its treatment have been difficult for us to find. But, I encourage you to continue looking because of the importance of slowing the progress of the effects.
God Bless you both!