My grandma has fibromyligia, Lupus, Sjögren's Syndrome..
People who don't have chronic stuff dont understand about how hard it can be to treat things that don't behave normally.
Sadly, the people who need to know the most about it (doctors) are often the people who send those who are chronically ill to psychiatrists. As if that is the magic cure.
Doctors like things to be put into nice, neat little categories so they can feel good about finding it. Unfortunately, most chronic diseases don't "act" like they "should" and therefore, it unsettles the professionals.
I like to think I'm the "expert" on CFIDS when I go to a new doctor, because I'm the one who has been living with the disease and it's restrictions.
But don't get me started on my experiences with ignorance...;o]