Lyme disease?
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My guess also. Not many doctors have expertise in diagnosis this illness. Seek out a specialist who has an established track record in treating lyme disease. I had a friend who went for years struggling with the illness until he found someone who identified and effectively treated the disease. You never get rid of it, but it can be managed.
If it *does* turn out to be Lyme, there are little-known possible treatments. Google Dr. Ritchie Shoemaker (MD out of Duke, now retired) — he’s done a lot on mold related illnesses (which share with Lyme, the element of fat-soluble neurotoxins; what is worse, some people are genetically predisposed to be more sensitive to these toxins than others).